Oral health care pathways for patients with epidermolysis bullosa: A position statement from the European reference network for rare skin diseases
Dental care pathways are presented for each type of EB. Specific considerations are discussed according to clinical features, including age of first referral, frequency of follow-up appointments, and list of dental specialties involved in the care of patients with EB.
Authors
- Nicola Meißner
- Arina Vinereanu (ORCID: https://orcid.org/0000-0001-9745-1315)
- Chithra Maria Joseph (ORCID: https://orcid.org/0009-0006-9248-7187)
- Susanne Krämer (ORCID: https://orcid.org/0000-0002-8510-4022)
- Reinhard Schilke
- Victoria Clark
- Joseph D. Jakowski
- Sebastián Véliz (ORCID: https://orcid.org/0000-0002-1893-3007)
- Veroniek Verhaeghe
- Hady Haririan (ORCID: https://orcid.org/0000-0003-0783-609X)
- Christine Bodemer (ORCID: https://orcid.org/0000-0001-8772-0905)
- Maria C. Bolling (ORCID: https://orcid.org/0000-0003-2086-9363)
- Joana Monteiro (ORCID: https://orcid.org/0000-0001-9676-1995)
- Anja Diem (ORCID: https://orcid.org/0000-0003-1603-2050)
- Katrin Bekes (ORCID: https://orcid.org/0000-0002-5249-0123)
- Katharina Bücher
- Cristina Has (ORCID: https://orcid.org/0000-0001-6066-507X)
- Jemima E. Mellerio (ORCID: https://orcid.org/0000-0002-2670-8117)
- Stephen Porter (ORCID: https://orcid.org/0000-0002-3328-2759)
- Anna Lena Hillebrecht
Institutions
- Sigmund Freud Privatuniversität Wien (AT)
- Hôpital Necker-Enfants Malades (FR)
- University Medical Center Groningen (NL)
- Witten/Herdecke University (DE)
- University of Freiburg (DE)
- Carol Davila University of Medicine and Pharmacy (RO)
- University of Groningen (NL)
- Guy's and St Thomas' NHS Foundation Trust (GB)
- Universidade de Santiago de Compostela (ES)
- Université Paris Cité (FR)
- Paracelsus Medical University (AT)
- University Medical Center Freiburg (DE)
- Centre Hospitalier Universitaire de Nice (FR)
- Medizinische Hochschule Hannover (DE)
- Assistance Publique – Hôpitaux de Paris (FR)
- Birmingham Children's Hospital (GB)
- Sheffield Teaching Hospitals NHS Foundation Trust (GB)
- ERN GUARD-Heart (NL)
- EB House Austria (AT)
- Eastman Dental Hospital (GB)
- University College London (GB)
- University of Chile (CL)
- Medical University of Vienna (AT)
- Ludwig-Maximilians-Universität München (DE)
- KU Leuven (BE)
Publication Details
- Journal
- Journal of the European Academy of Dermatology and Venereology
- Published
- 2024-12-13
- DOI
- https://doi.org/10.1111/jdv.20498
- Citations
- 4
- Primary Topic
- Skin and Cellular Biology Research
- Type
- article
- Field-Weighted Citation Impact
- 1.30