Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study

This paper explores the use of participatory video (PV) in a case study conducted in Arcoverde, Brazil, to address the call for greater participation of individuals with disabilities in health and social care planning and research. PV is grounded in similar concepts to the Disability Rights Movement's principle of "Nothing About Us, Without Us" and serves as a potential collaborative tool for individuals with disabilities to shape their narratives and contribute to research. The study was part of a multi-methods research project on healthcare access, with the PV research focusing on primary healthcare in Arcoverde. The researcher emphasizes the action-oriented and community-based approach, to foster an inclusive environment through workshops, story circles, and video-making. Ethical considerations prioritize informed consent and identity protection. The results underscore the potential empowering impact of PV, fostering community awareness and practical awareness among participants. The discussion emphasizes the ethical considerations, challenges, and the need for reflexivity in participatory video research.

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Publication Details

Journal
Qualitative Health Research
Published
2024-12-12
DOI
https://doi.org/10.1177/10497323241298922
Primary Topic
Participatory Visual Research Methods
Type
article
Field-Weighted Citation Impact
0.00

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article

Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study

Loveday Penn‐Kekana, Shaffa Hameed, Tom Shakespeare, Veronika Reichenberger et al.
Qualitative Health Research
Participatory Visual Research Methods
article

Enhancing Disability Research Through Participatory Video: Reflections on a Brazilian Study

Loveday Penn‐Kekana, Shaffa Hameed, Tom Shakespeare, Veronika Reichenberger, Hannah Kuper
article en

Abstract

This paper explores the use of participatory video (PV) in a case study conducted in Arcoverde, Brazil, to address the call for greater participation of individuals with disabilities in health and social care planning and research. PV is grounded in similar concepts to the Disability Rights Movement's principle of "Nothing About Us, Without Us" and serves as a potential collaborative tool for individuals with disabilities to shape their narratives and contribute to research. The study was part of a multi-methods research project on healthcare access, with the PV research focusing on primary healthcare in Arcoverde. The researcher emphasizes the action-oriented and community-based approach, to foster an inclusive environment through workshops, story circles, and video-making. Ethical considerations prioritize informed consent and identity protection. The results underscore the potential empowering impact of PV, fostering community awareness and practical awareness among participants. The discussion emphasizes the ethical considerations, challenges, and the need for reflexivity in participatory video research.

Qualitative Health Research
London School of Hygiene & Tropical Medicine (GB)
Medical Research Council
Reduced inequalities
Openalex Percentile: Top 63%
Participatory Visual Research Methods
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