Simple but Not Easy: A Case Study of Caregivers and CVI Resources in Early Intervention

Introduction: This multiple case study research analyzed how caregivers find and use resources to understand how cerebral or cortical visual impairment (CVI) manifest in young children. Method: Data were analyzed from three caregivers who received services from a well-resourced early intervention program in the Southwest of the United States. The aim was to examine how each parent accessed, valued, and implemented CVI-specific resources to meet practical and meaningful outcomes for their child. Results: The findings from this study clarify the journey that caregivers take from first learning about CVI to engaging in collaborative conversations with service providers about how resources can improve outcomes for their child. The caregivers selected, valued, and implemented resources that were varied in format and content. The resources they found most useful changed over time, and the resources they used with early intervention providers were the most efficacious. Discussion: This study of caregivers and providers within early intervention services found that CVI-specific resources provided in a timely manner and within meaningful collaborative discussion were valued and enacted. The findings show the importance of socially mediated CVI resources within hopeful conversations that provide specificity in how CVI manifests and simple interventions embedded in family routines. Implications for Practitioners: Caregiver access to CVI-specific resources alone does not equate to an understanding of the condition that leads to relevant practices and care. Providers should pair resources with collaborative discussions and coaching with parents to help them develop interventions that are simple, effective, and meaningful to the family.