The Social Convergence of Information Disorder: Discovery and Analysis of the “Fertile Ground” of COVID-19 Vaccine Hesitancy

Anti-vaccine advocates have long engaged in a harmful and baseless campaign that ties infertility to vaccines. Preliminary analysis of a large, real-time data collection of Twitter posts that filtered for COVID-19 vaccine and fertility content revealed a surprising moment when, after the vaccines rolled out, anti-vaccine advocates made a new tie to menstrual health not previously seen in anti-vaccine advocacy. We traced the tie to a co-opting of reports commencing soon after vaccines were distributed when people began to report menstrual anomalies—anomalies that would be alarming unless they could be confirmed to be a temporary side effect. These reports, which were attempts to cross-check experiences with others, soon became new sites of “convergence” where information exchange became disordered. Discourse analysis describes how a politicized debate around vaccines, reproductive health, the medical establishment, and the validity of lived experiences was differently argued. This disordered information space can be further characterized by three waves of “social convergence” of people with varying intentions and knowledge. Furthermore, a verification analysis of international popular press articles revealed a long delay before medical groups addressed the link anywhere in the world. Meanwhile, worrisome links between vaccines and other health matters—myo- and pericarditis—were rapidly confirmed with their attendant fears managed. One year after vaccines were distributed, insufficient messaging to women and menstruators persisted; meanwhile, disinforming behaviors were fueled by worry and the ready presence of anti-vaccine activists, illustrating how marginalized topics provide “fertile ground” for information disorder. Results contribute theoretically to our understanding of information disorder, with additional lessons for public health communication and disinformation mitigation.

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Publication Details

Journal
Computer Supported Cooperative Work (CSCW)
Published
2024-12-10
DOI
https://doi.org/10.1007/s10606-024-09506-w
Primary Topic
Misinformation and Its Impacts
Type
article
Field-Weighted Citation Impact
0.00

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article

The Social Convergence of Information Disorder: Discovery and Analysis of the “Fertile Ground” of COVID-19 Vaccine Hesitancy

Deepika Rama Subramanian, Leysia Palen, Hande Batan, Lindsay Levkoff Diamond et al.
Computer Supported Cooperative Work (CSCW)
Misinformation and Its Impacts
article

The Social Convergence of Information Disorder: Discovery and Analysis of the “Fertile Ground” of COVID-19 Vaccine Hesitancy

Deepika Rama Subramanian, Leysia Palen, Hande Batan, Lindsay Levkoff Diamond, T. Brad Harris
article en

Abstract

Anti-vaccine advocates have long engaged in a harmful and baseless campaign that ties infertility to vaccines. Preliminary analysis of a large, real-time data collection of Twitter posts that filtered for COVID-19 vaccine and fertility content revealed a surprising moment when, after the vaccines rolled out, anti-vaccine advocates made a new tie to menstrual health not previously seen in anti-vaccine advocacy. We traced the tie to a co-opting of reports commencing soon after vaccines were distributed when people began to report menstrual anomalies—anomalies that would be alarming unless they could be confirmed to be a temporary side effect. These reports, which were attempts to cross-check experiences with others, soon became new sites of “convergence” where information exchange became disordered. Discourse analysis describes how a politicized debate around vaccines, reproductive health, the medical establishment, and the validity of lived experiences was differently argued. This disordered information space can be further characterized by three waves of “social convergence” of people with varying intentions and knowledge. Furthermore, a verification analysis of international popular press articles revealed a long delay before medical groups addressed the link anywhere in the world. Meanwhile, worrisome links between vaccines and other health matters—myo- and pericarditis—were rapidly confirmed with their attendant fears managed. One year after vaccines were distributed, insufficient messaging to women and menstruators persisted; meanwhile, disinforming behaviors were fueled by worry and the ready presence of anti-vaccine activists, illustrating how marginalized topics provide “fertile ground” for information disorder. Results contribute theoretically to our understanding of information disorder, with additional lessons for public health communication and disinformation mitigation.

Computer Supported Cooperative Work (CSCW)Vol. 34(1)
University of Colorado Boulder (US)
National Science Foundation
Openalex Percentile: Top 64%
Misinformation and Its Impacts
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