Systematic Scoping Review of Socioeconomic Burden and Associated Psychosocial Impact in Patients With Rare Kidney Diseases and Their Caregivers
Significant gaps in our understanding of the socioeconomic burden remain, particularly in lower-resource health systems, among traditionally marginalized populations, and for rare diseases for which kidney is the primary affected organ. Further exploration of socioeconomic burden within these populations is vital to inform effectively targeted investment in advocacy and health care innovation for affected individuals.
Authors
- Monica Moorthy
- Olivier Devuyst (ORCID: https://orcid.org/0000-0003-3744-4767)
- Vivekanand Jha (ORCID: https://orcid.org/0000-0002-8015-9470)
- Blake J. Angell (ORCID: https://orcid.org/0000-0002-7188-7740)
- Ifeoma Ulasi (ORCID: https://orcid.org/0000-0001-7783-3025)
- Jonathan Barratt (ORCID: https://orcid.org/0000-0002-9063-7229)
- Anna Palagyi (ORCID: https://orcid.org/0000-0002-8127-9351)
- Stephen Jan (ORCID: https://orcid.org/0000-0003-2839-1405)
- Siyuan Wang (ORCID: https://orcid.org/0000-0001-6792-7482)
- Charu Malik
- Daniel P. Gale
- Agnivo Sengupta
Institutions
- Cliniques Universitaires Saint-Luc (BE)
- University of Leicester (GB)
- Manipal Academy of Higher Education (IN)
- University of Zurich (CH)
- UNSW Sydney (AU)
- The George Institute for Global Health (AU)
- George Institute for Global Health (IN)
- Federal Teaching Hospital Abakaliki (NG)
- University of Nigeria Teaching Hospital (NG)
- University College London (GB)
- Imperial College London (GB)
Publication Details
- Journal
- Kidney International Reports
- Published
- 2024-12-10
- DOI
- https://doi.org/10.1016/j.ekir.2024.12.005
- Citations
- 1
- Primary Topic
- Renal Diseases and Glomerulopathies
- Type
- article
- Field-Weighted Citation Impact
- 0.34
Funders
- Novartis
- International Society of Nephrology
- George Institute for Global Health