Legal obstacles jeopardise research in personalised medicine – experiences from a Nordic collaboration within rheumatology
<b>The current interpretation and implementation of the legal premises (rather than the GDPR per se) for research collaborations caused unnecessary barriers and delays. Our experiences call for Nordic trust-based code-of-conduct-like framework agreements, and for harmonisation of procedures and templates, lest the Nordic advantage in research be lost.</b>
Authors
- Isabel Gehring (ORCID: https://orcid.org/0000-0002-2516-5261)
- Ellen‐Margrethe Hauge (ORCID: https://orcid.org/0000-0003-2562-9174)
- Martina Johannesson (ORCID: https://orcid.org/0000-0002-4353-7583)
- Mats Hansson (ORCID: https://orcid.org/0000-0002-0168-9968)
- Niels Steen Krogh (ORCID: https://orcid.org/0000-0002-8520-1674)
- Leonid Padyukov (ORCID: https://orcid.org/0000-0003-2950-5670)
- Saedís Saevarsdóttir (ORCID: https://orcid.org/0000-0001-9392-6184)
- Hilde Berner Hammer (ORCID: https://orcid.org/0000-0001-7317-8991)
- Johan Askling (ORCID: https://orcid.org/0000-0003-0433-0616)
- Bente Appel Esbensen (ORCID: https://orcid.org/0000-0001-5331-8221)
- Merete Lund Hetland (ORCID: https://orcid.org/0000-0003-4229-6818)
- Tue Wenzel Kragstrup (ORCID: https://orcid.org/0000-0002-6439-397X)
- Lars Klareskog (ORCID: https://orcid.org/0000-0001-9601-6186)
- Bente Glintborg (ORCID: https://orcid.org/0000-0002-8931-8482)
- Helga Westerlind (ORCID: https://orcid.org/0000-0003-3380-5342)
- Johan Rönnelid (ORCID: https://orcid.org/0000-0003-1186-3226)
- B. Bislawska Axnäs
- Mikael Benson
Institutions
- Linköping University (SE)
- Uppsala University (SE)
- University of Copenhagen (DK)
- Karolinska University Hospital (SE)
- University of Iceland (IS)
- University of Oslo (NO)
- Aarhus University (DK)
- Aarhus University Hospital (DK)
- Copenhagen University Hospital (DK)
- Rigshospitalet (DK)
- Karolinska Institutet (SE)
- Diakonhjemmet Hospital (NO)
- Thermo Fisher Scientific (Germany) (DE)
Publication Details
- Journal
- Scandinavian Journal of Public Health
- Published
- 2024-12-01
- DOI
- https://doi.org/10.1177/14034948231212711
- Citations
- 2
- Primary Topic
- Musculoskeletal Disorders and Rehabilitation
- Type
- article
- Field-Weighted Citation Impact
- 0.50