Developing and applying potentially scalable recruitment strategies to accelerate ADRD research participation of Black adults

More than 2 million older Americans from underrepresented racial and ethnic minority groups (URGs) have early-stage Alzheimer's disease and related dementias (ADRD). There are very few scalable recruitment strategies, particularly for Black older adults, to accelerate participation in ADRD research. The Indiana Alzheimer's Disease Research Center (IADRC) and its Community Advisory Board developed and implemented the innovative RAAISE-D Framework. This Framework informed the creation of community-first recruitment strategies designed to accelerate participation of Black older adults in ADRD research. Preliminary outcomes from its implementation included the doubling of Black adult enrollment (46, 13.4% to 101, 26.9%) from April 2020 to April 2024. Black adults were more likely to have normal cognition, be female, and ≤ 12 years of education than non-Hispanic White adults. The RAAISE-D Framework identified key concepts for URG focused recruitment strategies which successfully accelerated enrollment of Black adults in ADRD research and could be generalized to other URGs. HIGHLIGHTS: RAAISE-D Framework provides adaptable URG recruitment strategies. IADRC CAB-researcher partnership was the foundation of community-first methodology. RAAISE-D Framework doubled the Black enrollment in the IADRC in 4 years.

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Institutions

Publication Details

Journal
Alzheimer s & Dementia
Published
2024-12-06
DOI
https://doi.org/10.1002/alz.14440
Citations
3
Primary Topic
Ethics in Clinical Research
Type
article
Field-Weighted Citation Impact
1.63

Funders

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article

Developing and applying potentially scalable recruitment strategies to accelerate ADRD research participation of Black adults

Frederick W. Unverzagt, Angelina J. Polsinelli, Shannon L. Risacher, Andrew J. Saykin et al.
3 citations
Alzheimer s & Dementia
Ethics in Clinical Research
1.63
article

Developing and applying potentially scalable recruitment strategies to accelerate ADRD research participation of Black adults

Frederick W. Unverzagt, Angelina J. Polsinelli, Shannon L. Risacher, Andrew J. Saykin, Mollie Richards, Christopher S. Campbell, Sujuan Gao, Patricia Shaw, Sophia Wang, Andrew Tackett, Sarah Van Heiden, Omolola A. Adeoye‐Olatunde, Steven A. Brown, Ralph C. Richards, Jane Musema
article en
3 citations

Abstract

More than 2 million older Americans from underrepresented racial and ethnic minority groups (URGs) have early-stage Alzheimer's disease and related dementias (ADRD). There are very few scalable recruitment strategies, particularly for Black older adults, to accelerate participation in ADRD research. The Indiana Alzheimer's Disease Research Center (IADRC) and its Community Advisory Board developed and implemented the innovative RAAISE-D Framework. This Framework informed the creation of community-first recruitment strategies designed to accelerate participation of Black older adults in ADRD research. Preliminary outcomes from its implementation included the doubling of Black adult enrollment (46, 13.4% to 101, 26.9%) from April 2020 to April 2024. Black adults were more likely to have normal cognition, be female, and ≤ 12 years of education than non-Hispanic White adults. The RAAISE-D Framework identified key concepts for URG focused recruitment strategies which successfully accelerated enrollment of Black adults in ADRD research and could be generalized to other URGs. HIGHLIGHTS: RAAISE-D Framework provides adaptable URG recruitment strategies. IADRC CAB-researcher partnership was the foundation of community-first methodology. RAAISE-D Framework doubled the Black enrollment in the IADRC in 4 years.

Alzheimer s & DementiaVol. 21(2)
University of Indianapolis (US), Advisory Board Company (United States) (US), Indiana University School of Medicine, Indiana University – Purdue University Indianapolis (US)
Alzheimer's Association, National Institute on Aging
Partnerships for the goals
Openalex Percentile: Top 15%
Ethics in Clinical Research
1.63
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