International Society on Thrombosis and Haemostasis Clinical Practice Guideline for Treatment of Congenital Haemophilia—A Critical Appraisal
These recommendations may mislead healthcare professionals, payers and governments and therefore cannot serve the patient community well. They setback the advances made in haemophilia care because they overlook important available evidence and do not guide clinical practice to contemporary standards.
Authors
- Emna Gouider (ORCID: https://orcid.org/0000-0001-7315-3479)
- Manuela Albisetti (ORCID: https://orcid.org/0000-0002-7977-8848)
- Cedric R.J.R. Hermans (ORCID: https://orcid.org/0000-0001-5429-8437)
- Jan Astermark (ORCID: https://orcid.org/0000-0001-8500-2483)
- Rita Santoro (ORCID: https://orcid.org/0000-0002-5081-8201)
- Michael Recht (ORCID: https://orcid.org/0000-0002-2805-1016)
- Robert Klamroth (ORCID: https://orcid.org/0000-0003-4194-8183)
- Olivia Romero‐Lux
- Yesim G. Dargaud (ORCID: https://orcid.org/0000-0002-4888-1463)
- Liane Khoo
- Alok Srivastava (ORCID: https://orcid.org/0000-0001-5032-5020)
- Maria Elisa Mancuso (ORCID: https://orcid.org/0000-0002-7113-4028)
- Margareth C. Ozelo (ORCID: https://orcid.org/0000-0001-5938-0675)
- Kathelijn Fischer (ORCID: https://orcid.org/0000-0001-7126-6613)
- Renchi Yang (ORCID: https://orcid.org/0000-0003-3741-8518)
- Tadashi Matsushita (ORCID: https://orcid.org/0000-0002-3646-3125)
- Jan Blatný (ORCID: https://orcid.org/0000-0001-6261-9157)
- Víctor Jiménez‐Yuste (ORCID: https://orcid.org/0000-0003-3937-3499)
- Amy L. Dunn (ORCID: https://orcid.org/0000-0002-9645-6365)
- Radosław Kaczmarek (ORCID: https://orcid.org/0000-0001-8084-1958)
- Wolfgang Miesbach (ORCID: https://orcid.org/0000-0001-8286-5398)
- Beatrice Nolan (ORCID: https://orcid.org/0000-0003-0145-4736)
- David Lillicrap (ORCID: https://orcid.org/0000-0003-2410-6312)
- Manuel Carção (ORCID: https://orcid.org/0000-0001-5350-1763)
- Jerzy Windyga (ORCID: https://orcid.org/0000-0001-7877-4784)
- Pratima Chowdary (ORCID: https://orcid.org/0000-0002-6690-8586)
- Sophie Susen (ORCID: https://orcid.org/0000-0001-5953-163X)
- Dawn Rotellini (ORCID: https://orcid.org/0000-0003-3354-3880)
- Sandrine Meunier (ORCID: https://orcid.org/0000-0001-6785-4332)
- Christoph Male (ORCID: https://orcid.org/0000-0002-4989-6421)
- Mark W. Skinner (ORCID: https://orcid.org/0000-0002-0934-0680)
- Glenn F. Pierce (ORCID: https://orcid.org/0000-0002-3310-328X)
- Roseline d’Oiron (ORCID: https://orcid.org/0000-0002-4843-7805)
- Annie Harroche (ORCID: https://orcid.org/0000-0001-7368-4624)
- Nathan T. Connell (ORCID: https://orcid.org/0000-0003-4100-7826)
- Miguel A. Escobar (ORCID: https://orcid.org/0000-0002-2944-0240)
- Kate Talks
- Huyen Tran (ORCID: https://orcid.org/0000-0003-1989-959X)
- Leonard A. Valentino
- Johannes Oldenburg (ORCID: https://orcid.org/0000-0003-3038-2145)
- Carmen Escuriola Ettingshausen (ORCID: https://orcid.org/0000-0003-0802-5280)
- Florian Länger
- Brian O’Mahony (ORCID: https://orcid.org/0000-0001-9780-6972)
- Tammuella Singleton
- Johnny Mahlangu
- Jesús Ardila
- Gloria Ramos
Institutions
- Université Claude Bernard Lyon 1 (FR)
- National Health Laboratory Service (ZA)
- Goethe University Frankfurt (DE)
- Brigham and Women's Hospital (US)
- Rush University Medical Center (US)
- Hôpital Necker-Enfants Malades (FR)
- Nationwide Children's Hospital (US)
- Cliniques Universitaires Saint-Luc (BE)
- University of Bonn (DE)
- Harvard University (US)
- Inserm (FR)
- Universität Hamburg (DE)
- Tel Aviv University (IL)
- Royal Free London NHS Foundation Trust (GB)
- Universidade Estadual de Campinas (UNICAMP) (BR)
- University of Toronto (CA)
- Lund University (SE)
- University of the Witwatersrand (ZA)
- Chinese Academy of Medical Sciences & Peking Union Medical College (CN)
- Queen's University (CA)
- Masaryk University (CZ)
- Université de Lille (FR)
- Université Paris-Saclay (FR)
- University Hospital Bonn (DE)
- Irish Cancer Society (IE)
- Royal Prince Alfred Hospital (AU)
- Ochsner Medical Center (US)
- Sheba Medical Center (IL)
- Hospital Universitario La Paz (ES)
- Canadian Hemophilia Society (CA)
- Hospital for Sick Children (CA)
- Newcastle upon Tyne Hospitals NHS Foundation Trust (GB)
- The Alfred Hospital (AU)
- Children's Health Ireland at Crumlin (IE)
- University Medical Center Utrecht (NL)
- Yale University (US)
- Nagoya University Hospital (JP)
- Assistance Publique – Hôpitaux de Paris (FR)
- Hospices Civils de Lyon (FR)
- University Hospital Brno (CZ)
- University Medical Center Hamburg-Eppendorf (DE)
- University Children's Hospital Zurich (CH)
- University Hospital Frankfurt (DE)
- Hôpital Louis Pradel (FR)
- Skåne University Hospital (SE)
- SickKids Foundation (CA)
- St.John's Medical College Hospital (IN)
- Institute of Hematology & Blood Diseases Hospital (CN)
- Klinikum im Friedrichshain (DE)
- Bicêtre Hospital (FR)
- IRCCS Humanitas Research Hospital (IT)
- Indiana University School of Medicine
- Indiana University – Purdue University Indianapolis (US)
- Monash University (AU)
- Tunis El Manar University (TN)
- Medical University of Vienna (AT)
- Universidad del Valle (CO)
- The University of Texas Health Science Center at Houston (US)
- McMaster University (CA)
Publication Details
- Journal
- Haemophilia
- Published
- 2024-12-06
- DOI
- https://doi.org/10.1111/hae.15135
- Citations
- 6
- Primary Topic
- Hemophilia Treatment and Research
- Type
- article
- Field-Weighted Citation Impact
- 2.73
Funders
- Amgen
- Pfizer
- AstraZeneca
- Bayer
- Sanofi
- Alnylam Pharmaceuticals
- CSL Behring
- Regeneron Pharmaceuticals
- HemoSonics
- Novo Nordisk
- Siemens Healthineers
- Swedish Orphan Biovitrum
- Grifols
- Genentech
- Chugai Pharmaceutical