A core outcome set for best care for the dying person: Results of an international Delphi study and consensus meeting
This study involved a large and diverse sample of key stakeholders in defining the core outcome set for best care for the dying person, focusing on the last days of life. By actively integrating the perspectives of family carers and patient representatives from various cultural backgrounds this Core Outcome Set enriches our understanding of essential elements of care for the dying and provides a solid foundation for advancing quality of end-of-life care.
Authors
- Carl Johan Fürst (ORCID: https://orcid.org/0000-0002-2406-6907)
- Valentina González-Jaramillo (ORCID: https://orcid.org/0000-0002-2470-7022)
- Dagny Faksvåg Haugen (ORCID: https://orcid.org/0000-0002-8592-4995)
- Raymond Voltz
- Steffen Eychmüller
- Maria Luisa Martín-Roselló
- Sofía C. Zambrano (ORCID: https://orcid.org/0000-0002-0918-9722)
- Claudia Fischer (ORCID: https://orcid.org/0000-0001-7574-8097)
- John Ellershaw (ORCID: https://orcid.org/0000-0001-9789-3180)
- Urška Lunder
- Lia van Zuylen (ORCID: https://orcid.org/0000-0002-7142-7605)
- Vilma Tripodoro (ORCID: https://orcid.org/0000-0003-2328-6032)
- Agnes van der Heide (ORCID: https://orcid.org/0000-0001-5584-4305)
- Birgit H. Rasmussén (ORCID: https://orcid.org/0000-0003-0830-6058)
- Pilar Barnestein‐Fonseca (ORCID: https://orcid.org/0000-0003-2767-8017)
- Paula Ruth Williamson (ORCID: https://orcid.org/0000-0001-9802-6636)
- Judit Simon (ORCID: https://orcid.org/0000-0001-9279-8627)
- Martina Egloff
- Andri Christen-Cevallos Rosero
- Stephen Mason (ORCID: https://orcid.org/0000-0002-4020-6869)
- Valgerður Sigurðardóttir (ORCID: https://orcid.org/0000-0002-1654-0226)
- Simon Allan (ORCID: https://orcid.org/0000-0002-9578-6469)
Institutions
- University of Bern (CH)
- University of Liverpool (GB)
- Lund University (SE)
- Haukeland University Hospital (NO)
- University Hospital of Bern (CH)
- Erasmus MC (NL)
- National University Hospital of Iceland (IS)
- University Clinic of Pulmonary and Allergic Diseases Golnik (SI)
- Institute of Social and Preventive Medicine (CH)
- Estudios Clínicos Latinoamérica (AR)
- Centrum für Integrierte Onkologie (DE)
- Amsterdam University Medical Centers (NL)
- University Hospital Cologne (DE)
- University of Bergen (NO)
- Medical University of Vienna (AT)
- Universidad de Navarra (ES)
Publication Details
- Journal
- Palliative Medicine
- Published
- 2024-12-04
- DOI
- https://doi.org/10.1177/02692163241300867
- Citations
- 8
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 4.34
Funders
- National Science Foundation
- European Commission
- Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung