Parents' Experiences With and Preferences for Receiving Information About Tumor Genomic Sequencing: Findings From a Qualitative Study and Implications for Practice
Parents made suggestions consistent with elements of established high-quality communication in pediatric oncology. As genomic testing is more standardly incorporated into childhood cancer care, communication with parents may need to adapt to reflect this. Our findings highlight potential opportunities to support parents in receiving information about genomic testing.
Authors
- Shannon M Stasi (ORCID: https://orcid.org/0000-0002-8370-2731)
- Emily Bonkowski (ORCID: https://orcid.org/0000-0001-9886-4082)
- Jonathan M. Marron
- Krysta S. Barton (ORCID: https://orcid.org/0000-0002-3424-3911)
- Natalie Waligorski
- Abby R. Rosenberg (ORCID: https://orcid.org/0000-0002-7608-607X)
- Brittany L. Greene (ORCID: https://orcid.org/0000-0001-9551-815X)
Institutions
- Boston Children's Hospital (US)
- Seattle Children's Hospital (US)
- St. Jude Children's Research Hospital (US)
- Harvard University (US)
- University of Washington (US)
- Center for Practical Bioethics (US)
- Center for Cancer and Blood Disorders (US)
- Dana-Farber Cancer Institute (US)
- Dana-Farber/Boston Children's Cancer and Blood Disorders Center (US)
- Stanford University (US)
Publication Details
- Journal
- JCO Precision Oncology
- Published
- 2024-12-01
- DOI
- https://doi.org/10.1200/po-24-00543
- Citations
- 2
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 2.22