On disclosing Alzheimer’s disease: A need of empathy

The disclosure of an Alzheimer’s disease (AD) diagnosis is not always carried out following recognized bioethical principles. Inappropriate disclosing attitudes may induce unfortunate psychological impacts on the patients’ well-being, depriving them of an emotionally balanced adjustment to the condition. We present and discuss some examples of such inappropriate professional behavior, contradicting traditional medical teaching that “there are no diseases but patients.” We emphasize patient singularity and the need for a caring and empathy-driven approach to diagnostic disclosure. We underline the need to avoid emotionally charged terms at the time of disclosure and to provide cognitive, physical, and social interaction guidelines as prevention and containment strategies. We call for a revised approach on the appropriate disclosure of an AD diagnosis.

Authors

Publication Details

Journal
Advanced Neurology
Published
2024-11-28
DOI
https://doi.org/10.36922/an.4393
Primary Topic
Biomedical Ethics and Regulation
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

On disclosing Alzheimer’s disease: A need of empathy

O Fustinoni, Edith Labos
Advanced Neurology
Biomedical Ethics and Regulation
article

On disclosing Alzheimer’s disease: A need of empathy

O Fustinoni, Edith Labos
article en

Abstract

The disclosure of an Alzheimer’s disease (AD) diagnosis is not always carried out following recognized bioethical principles. Inappropriate disclosing attitudes may induce unfortunate psychological impacts on the patients’ well-being, depriving them of an emotionally balanced adjustment to the condition. We present and discuss some examples of such inappropriate professional behavior, contradicting traditional medical teaching that “there are no diseases but patients.” We emphasize patient singularity and the need for a caring and empathy-driven approach to diagnostic disclosure. We underline the need to avoid emotionally charged terms at the time of disclosure and to provide cognitive, physical, and social interaction guidelines as prevention and containment strategies. We call for a revised approach on the appropriate disclosure of an AD diagnosis.

Advanced NeurologyVol. 4(2)
Reduced inequalities
Openalex Percentile: Top 69%
Biomedical Ethics and Regulation
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.