SPOON: an observational, cross-sectional study of perceptions and expectations of adults with generalised myasthenia gravis in France
These findings could help healthcare professionals to understand and better address patients' aspirations about living with MG, notably concerning the importance of physical activity, and their expectations for improved treatments.
Authors
- Jean‐Philippe Camdessanché (ORCID: https://orcid.org/0000-0002-5282-6707)
- Jean‐Philippe Bertocchio (ORCID: https://orcid.org/0000-0002-4104-702X)
- Guilhem Solé (ORCID: https://orcid.org/0000-0001-9599-6573)
- Anne Crochard (ORCID: https://orcid.org/0000-0003-3856-7275)
- Pierre Boulanger (ORCID: https://orcid.org/0000-0002-4219-1699)
- Sabrina Sacconi (ORCID: https://orcid.org/0000-0002-0246-1455)
- Alexandre Richard (ORCID: https://orcid.org/0009-0001-4318-3594)
- Annie Archer
- Pierre-Edouard Villy
Institutions
- Université Côte d'Azur (FR)
- Centre Hospitalier Universitaire de Bordeaux (FR)
- Association Francaise contre les Myopathies (FR)
- UCB Pharma (France) (FR)
- Centre Hospitalier Universitaire de Saint-Étienne (FR)
Publication Details
- Journal
- BMJ Open
- Published
- 2024-12-01
- DOI
- https://doi.org/10.1136/bmjopen-2024-088813
- Citations
- 8
- Primary Topic
- Myasthenia Gravis and Thymoma
- Type
- article
- Field-Weighted Citation Impact
- 2.95
Funders
- Sanofi
- Biogen
- Alexion Pharmaceuticals
- Amicus Therapeutics
- Argenx
- UCB Pharma