Patient Perceptions of Emerging Gene Therapies for Arrhythmogenic Right Ventricular Cardiomyopathy
Several characteristics of the individual and trial warrant consideration during the informed consent process. Insights from this study may affect trial planning and communication with participants who have inherited cardiac conditions.
Authors
- Leonore Okwara (ORCID: https://orcid.org/0000-0001-6948-833X)
- Andreas S. Barth (ORCID: https://orcid.org/0000-0001-5275-8049)
- Hugh G Calkins (ORCID: https://orcid.org/0000-0002-9262-9433)
- Crystal Tichnell (ORCID: https://orcid.org/0000-0003-3465-294X)
- Amy Turriff (ORCID: https://orcid.org/0000-0002-8065-7445)
- Brittney Murray (ORCID: https://orcid.org/0000-0001-7870-8584)
- Leila Jamal (ORCID: https://orcid.org/0000-0003-1132-2411)
- Emma M. Schopp (ORCID: https://orcid.org/0000-0003-0419-049X)
- Cynthia A. James (ORCID: https://orcid.org/0000-0001-8040-4600)
Institutions
- National Institutes of Health (US)
- Johns Hopkins University (US)
- Uniformed Services University of the Health Sciences (US)
- Johns Hopkins Medicine (US)
- National Human Genome Research Institute (US)
- National Cancer Institute (MY)
- Cancer Genetics (United States) (US)
Publication Details
- Journal
- Circulation Genomic and Precision Medicine
- Published
- 2024-11-29
- DOI
- https://doi.org/10.1161/circgen.124.004759
- Primary Topic
- Cardiovascular Effects of Exercise
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institutes of Health
- National Cancer Institute