Self-Perception of Physical Problems in Patients with Non-Vascular Type of Ehlers–Danlos Syndrome: A Qualitative Study
The analysis of the interviews reveals that individuals with Ehlers-Danlos syndrome face significant physical and emotional challenges. Physical symptoms, particularly chronic pain, fatigue, and joint issues, severely impact their ability to lead a normal life. These symptoms, along with perceived uncertainty and stress, contribute to a reduced quality of life, affecting both physical and emotional well-being.
Authors
- Pedro V. Munuera-Martínez (ORCID: https://orcid.org/0000-0001-5708-4178)
- María del Carmen Vázquez-Bautista (ORCID: https://orcid.org/0000-0002-8217-7664)
- Gabriel Domínguez-Maldonado (ORCID: https://orcid.org/0000-0001-8549-7703)
- María Reina‐Bueno (ORCID: https://orcid.org/0000-0001-9316-8942)
- Inmaculada C. Palomo-Toucedo (ORCID: https://orcid.org/0000-0001-9901-8937)
- Fátima León-Larios (ORCID: https://orcid.org/0000-0001-9475-0440)
Institutions
- Universidad de Sevilla (ES)
Publication Details
- Journal
- Healthcare
- Published
- 2024-11-28
- DOI
- https://doi.org/10.3390/healthcare12232392
- Primary Topic
- Connective tissue disorders research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Universidad de Sevilla