The experience of children using long-term non-invasive ventilation: a qualitative study
LT-NIV use has two sides; it helps to improve lives though requires an investment of time and commitment to ensure success. Investing in pediatric-specific equipment needs to be a priority as do alliances between healthcare providers, children who use LT-NIV, and their families. Future technology development and studies of adherence need to consider the experiences of children and their families to reduce the challenges and support optimal use of LT-NIV.
Authors
- Allison Carroll
- Deborah Olmstead (ORCID: https://orcid.org/0000-0003-4271-651X)
- Joanna E. MacLean (ORCID: https://orcid.org/0000-0001-7994-9910)
- Jennifer Klein (ORCID: https://orcid.org/0000-0001-7424-9982)
Institutions
- Royal Children's Hospital (AU)
- University of Alberta (CA)
- Glenrose Rehabilitation Hospital (CA)
- Women and Children’s Health Research Institute (CA)
- Stollery Children's Hospital (CA)
Publication Details
- Journal
- Frontiers in Sleep
- Published
- 2024-11-28
- DOI
- https://doi.org/10.3389/frsle.2024.1459349
- Primary Topic
- Respiratory Support and Mechanisms
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Women and Children's Health Research Institute
- Children’s Hospital of Wisconsin Research Institute