The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults
IMPACT provides insights into the humanistic burden of OI on adults, revealing that OI has a substantial impact on the QoL of adults. OI severity and fracture frequency were consistently identified as drivers of impact on QoL across all domains. Understanding these drivers may aid in identifying areas for targeted interventions, such as fracture prevention.
Authors
- Ingunn Westerheim
- Frank Rauch (ORCID: https://orcid.org/0000-0002-6261-0360)
- Tracy Hart (ORCID: https://orcid.org/0000-0003-4967-9272)
- Taco van Welzenis
- Oliver Semler (ORCID: https://orcid.org/0000-0003-0029-7556)
- Samantha Prince (ORCID: https://orcid.org/0000-0003-1879-0293)
- Cathleen Raggio
- Lena Lande Wekre (ORCID: https://orcid.org/0000-0001-9838-2518)
- Ruby Dadzie (ORCID: https://orcid.org/0009-0009-3366-3808)
- Laetitia Dewavrin
Institutions
- Hospital for Special Surgery (US)
- University of Cologne (DE)
- Sunnaas sykehus (NO)
- Picker Institute Europe (GB)
- Science Oxford (GB)
- Osteogenesis Imperfecta Foundation (US)
- University Hospital Cologne (DE)
- McGill University (CA)
Publication Details
- Journal
- BMC Public Health
- Published
- 2024-11-28
- DOI
- https://doi.org/10.1186/s12889-024-20555-0
- Citations
- 5
- Primary Topic
- Connective tissue disorders research
- Type
- article
- Field-Weighted Citation Impact
- 2.75
Funders
- Mereo BioPharma