End of life care in paediatric settings: UK national survey
Children at end of life, and families, experience differences in care that evidence indicates matter to them and impact outcomes. Some differences appear to be related to the type of setting. Subsequent stages of this research (the ENHANCE study) will investigate the relative contribution of these core elements of end of life care to child/parent outcomes and experiences.
Authors
- Lorna Fraser (ORCID: https://orcid.org/0000-0002-1360-4191)
- Catherine Elizabeth Hewitt (ORCID: https://orcid.org/0000-0002-0415-3536)
- Helen Weatherly (ORCID: https://orcid.org/0000-0002-9117-6452)
- Fliss EM Murtagh (ORCID: https://orcid.org/0000-0003-1289-3726)
- Jane Noyes (ORCID: https://orcid.org/0000-0003-4238-5984)
- André Bedendo (ORCID: https://orcid.org/0000-0001-9554-6564)
- Andrew Haynes (ORCID: https://orcid.org/0000-0003-3030-629X)
- Gabriella Walker (ORCID: https://orcid.org/0009-0005-2693-4041)
- Andrew Papworth (ORCID: https://orcid.org/0000-0002-3244-2634)
- Richard Hain (ORCID: https://orcid.org/0000-0001-5838-1713)
- Bob Phillips (ORCID: https://orcid.org/0000-0002-4938-9673)
- Julia Hackett (ORCID: https://orcid.org/0000-0003-1720-6665)
- Sam Oddie (ORCID: https://orcid.org/0000-0001-8701-4912)
- Bryony Beresford (ORCID: https://orcid.org/0000-0003-0716-2902)
- Richard Feltbower (ORCID: https://orcid.org/0000-0002-1728-9408)
- Sebastian Hinde (ORCID: https://orcid.org/0000-0002-7117-4142)
- Gayathri Subramanian (ORCID: https://orcid.org/0000-0003-1771-4002)
- Chakrapani Vasudevan
Institutions
- National Health Service (GB)
- Cardiff and Vale University Health Board (GB)
- University of Leeds (GB)
- Bangor University (GB)
- King's College London (GB)
- University of Hull (GB)
- Swansea University (GB)
- Manchester University NHS Foundation Trust (GB)
- Cicely Saunders International (GB)
- Bradford Teaching Hospitals NHS Foundation Trust (GB)
- University of York (GB)
- Hull York Medical School (GB)
Publication Details
- Journal
- BMJ Supportive & Palliative Care
- Published
- 2024-11-28
- DOI
- https://doi.org/10.1136/spcare-2023-004673
- Citations
- 4
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 4.44
Funders
- National Institute for Health and Care Research
- Department of Health and Social Care
- Health and Social Care Delivery Research