Institutional policies on research-related transportation could help improve research engagement

<h3>Context</h3> The Healthy Brain and Child Development (HBCD) study, a nationwide consortium, plans to enroll 7,000 child-parent dyads and follow them up for a decade. Participants will complete many assessments, some time intensive. Transportation has emerged as a major barrier to research involvement, especially among underserved populations. <h3>Objective</h3> To evaluate the presence of institutional policies or guidance on research-related transportation across the HBCD sites, and, if needed, develop recommendations for such policies to optimally support research teams and participants. <h3>Study Design</h3> We sought information on policies for research-related transportation across the HBCD study sites. Data on five policy domains identified as key to research-related transportation were extracted from each existing policy and summarized. <h3>Setting</h3> Research sites involved in the HBCD Consortium birth cohort study. <h3>Instrument</h3> All HBCD sites received a brief email survey asking about the presence of institutional policies on research-related transportation. In addition, a standardized online search was completed for such policies for each site. <h3>Outcome Measures</h3> Presence of institutional policies addressing one or more of the five domains, key to guiding study team’s approach toward research-related transportation: study team’s travel for research business; transporting research participants and accompanying persons; transporting children; reimbursing participants for travel; and utilizing existing transportation services. In addition, information on liability insurance and protections was sought. <h3>Results</h3> Among the surveyed 28 HBCD sites, five sites had a total of seven policies specifically addressing some of the key domains of research-related transportation: research staff transporting research participants (n=1 policy), reimbursing participants for research-related travel costs (n=2), and the use of existing transportation services for participant travel (n=4). No policy addressed transporting a child-participant or when they require car/booster seats, or research staff travel specifically for “study business.” Policies from 17 sites had some language on general liability protections for research personnel. <h3>Conclusions</h3> Policies for research-related transportation are scarce among institutions engaged in clinical research. Implementation of such policies could support recruitment, retention, sample diversity, and generalizability of research findings.

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Publication Details

Published
2024-11-20
DOI
https://doi.org/10.1370/afm.22.s1.6979
Primary Topic
Health Systems, Economic Evaluations, Quality of Life
Type
article
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article

Institutional policies on research-related transportation could help improve research engagement

Aleksandra E Zgierska, Nikhil Menon, Nicholas Prestayko, Ann Fisher
Health Systems, Economic Evaluations, Quality of Life
article

Institutional policies on research-related transportation could help improve research engagement

Aleksandra E Zgierska, Nikhil Menon, Nicholas Prestayko, Ann Fisher
article en

Abstract

<h3>Context</h3> The Healthy Brain and Child Development (HBCD) study, a nationwide consortium, plans to enroll 7,000 child-parent dyads and follow them up for a decade. Participants will complete many assessments, some time intensive. Transportation has emerged as a major barrier to research involvement, especially among underserved populations. <h3>Objective</h3> To evaluate the presence of institutional policies or guidance on research-related transportation across the HBCD sites, and, if needed, develop recommendations for such policies to optimally support research teams and participants. <h3>Study Design</h3> We sought information on policies for research-related transportation across the HBCD study sites. Data on five policy domains identified as key to research-related transportation were extracted from each existing policy and summarized. <h3>Setting</h3> Research sites involved in the HBCD Consortium birth cohort study. <h3>Instrument</h3> All HBCD sites received a brief email survey asking about the presence of institutional policies on research-related transportation. In addition, a standardized online search was completed for such policies for each site. <h3>Outcome Measures</h3> Presence of institutional policies addressing one or more of the five domains, key to guiding study team’s approach toward research-related transportation: study team’s travel for research business; transporting research participants and accompanying persons; transporting children; reimbursing participants for travel; and utilizing existing transportation services. In addition, information on liability insurance and protections was sought. <h3>Results</h3> Among the surveyed 28 HBCD sites, five sites had a total of seven policies specifically addressing some of the key domains of research-related transportation: research staff transporting research participants (n=1 policy), reimbursing participants for research-related travel costs (n=2), and the use of existing transportation services for participant travel (n=4). No policy addressed transporting a child-participant or when they require car/booster seats, or research staff travel specifically for “study business.” Policies from 17 sites had some language on general liability protections for research personnel. <h3>Conclusions</h3> Policies for research-related transportation are scarce among institutions engaged in clinical research. Implementation of such policies could support recruitment, retention, sample diversity, and generalizability of research findings.

Openalex Percentile: Top 74%
Health Systems, Economic Evaluations, Quality of Life
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