Community engagement conduct for genetics and genomics research: a qualitative study of the experiences and perspectives of key stakeholders in Uganda
This study provides challenges and facilitators on the conduct of CE in GGR in Uganda. Measures including the building of capacity especially knowledge in both GGR and CE for all the stakeholders, and using this study findings to inform policy, regulation, and further research will potentially contribute to ethical CE in GGR in Uganda and similar research contexts.
Authors
- Edward Wamala
- Vincent Pius Alibu
- Enock Matovu (ORCID: https://orcid.org/0000-0003-0714-7032)
- John Barugahare (ORCID: https://orcid.org/0000-0001-6420-4756)
- Harriet Nankya (ORCID: https://orcid.org/0000-0002-6394-2340)
Institutions
- Makerere University (UG)
Publication Details
- Journal
- BMC Medical Ethics
- Published
- 2024-11-27
- DOI
- https://doi.org/10.1186/s12910-024-01137-6
- Citations
- 1
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.54
Funders
- National Institutes of Health