Priorities of the Pediatric Spinal Cord Injury Population: An International Study on Patient-Reported Outcome Measures
Adolescents/young adults highlighted health domain priorities compared with their P&C, who equally considered L&H domains. Life domains, which were previously unaddressed, were highlighted by P&C, including "adulthood expectations" and "parenthood expectations". This survey will promote the involvement of stakeholders for comprehensive rehabilitation management for this population.
Authors
- Bashak Onal
- Elisa López‐Dolado (ORCID: https://orcid.org/0000-0002-3358-727X)
- Julian Taylor (ORCID: https://orcid.org/0000-0003-2553-2348)
- Erin Hayes Kelly
- Anke Scheel‐Sailer (ORCID: https://orcid.org/0000-0003-3820-6664)
- Svetlana Valiullina
- Juan Carlos Arango‐Lasprilla (ORCID: https://orcid.org/0000-0002-7184-8311)
- Marta Ríos‐León (ORCID: https://orcid.org/0000-0001-9110-139X)
- Marika Augutis (ORCID: https://orcid.org/0000-0002-9711-1756)
- Antonis Kontaxakis (ORCID: https://orcid.org/0000-0002-7076-890X)
- Allison Graham
Institutions
- Ikerbasque (ES)
- American Academy of Pediatrics (US)
- University of Lucerne (CH)
- University of the Basque Country (ES)
- Buckinghamshire Healthcare NHS Trust (GB)
- Karolinska Institutet (SE)
- University of Oxford (GB)
- BioCruces Health research Institute (ES)
- Research Institute of Emergency Childrens Surgery and Traumatology (RU)
- 401 General Military Hospital of Athens (GR)
- Manchester College (GB)
- Servicio de Salud de Castilla La Mancha (ES)
- Hospital Nacional de Parapléjicos (ES)
- Swiss Paraplegic Research (CH)
Publication Details
- Journal
- Children
- Published
- 2024-11-23
- DOI
- https://doi.org/10.3390/children11121415
- Primary Topic
- Spinal Cord Injury Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Fundación Alicia Koplowitz
- Euskal Herriko Unibertsitatea
- Ikerbasque, Basque Foundation for Science
- Karolinska Institutet
- Norrbacka-Eugeniastiftelsen
- Biocruces Bizkaia es el Instituto de Investigación Sanitaria
- Agencia Estatal de Investigación