Building a Digital Health Research Platform to Enable Recruitment, Enrollment, Data Collection, and Follow-Up for a Highly Diverse Longitudinal US Cohort of 1 Million People in the All of Us Research Program: Design and Implementation Study
We built a participant-centric digital platform with tools to enable engagement with individuals from different racial, ethnic, and socioeconomic backgrounds and other UBR groups. This DHRP demonstrated successful use among diverse participants. These findings could be used as best practices for the effective use of digital platforms to build and sustain cohorts of various study designs and increase engagement with diverse populations in health research.
Authors
- Letheshia Husbands
- Alan Ashbeck
- Jacob L. McCauley (ORCID: https://orcid.org/0000-0002-1805-1733)
- Mark Begale (ORCID: https://orcid.org/0000-0002-3598-4498)
- Sherilyn J. Sawyer (ORCID: https://orcid.org/0000-0002-7000-6016)
- Praduman Jain (ORCID: https://orcid.org/0000-0002-0062-7044)
- Aisha Montgomery (ORCID: https://orcid.org/0000-0003-0175-3437)
- Dave Klein (ORCID: https://orcid.org/0000-0001-9960-3773)
- Deepti Joshi (ORCID: https://orcid.org/0000-0001-7217-7217)
- Scott Sutherland (ORCID: https://orcid.org/0009-0009-0867-0854)
- Marcy Palmer
Institutions
- University of Miami (US)
- Virginia International University (US)
- Boston VA Research Institute (US)
- The Task Force for Global Health (US)
Publication Details
- Journal
- Journal of Medical Internet Research
- Published
- 2024-11-25
- DOI
- https://doi.org/10.2196/60189
- Citations
- 8
- Primary Topic
- Mobile Health and mHealth Applications
- Type
- article
- Field-Weighted Citation Impact
- 6.79