National COVID Cohort Collaborative data enhancements: a path for expanding common data models
In this initiative, we rapidly produced project-specific data modeling guidance and documentation in support of long COVID research while maintaining a commitment to terminology standards and harmonized data.
Authors
- Marshall Clark (ORCID: https://orcid.org/0000-0001-5827-4862)
- Sofia Dard (ORCID: https://orcid.org/0000-0002-0286-2515)
- Michele Morris (ORCID: https://orcid.org/0000-0002-3255-5727)
- Stephanie Hong (ORCID: https://orcid.org/0000-0002-0795-1293)
- Adam M. Lee (ORCID: https://orcid.org/0000-0002-8311-581X)
- Kellie M Walters (ORCID: https://orcid.org/0000-0002-7473-1709)
- Robert Miller (ORCID: https://orcid.org/0000-0002-1787-2855)
- Kristin Kostka (ORCID: https://orcid.org/0000-0003-2595-8736)
- Matvey B. Palchuk (ORCID: https://orcid.org/0000-0002-7737-8752)
- Elizabeth Kelly (ORCID: https://orcid.org/0000-0002-3722-8928)
- Emily Pfaff (ORCID: https://orcid.org/0000-0002-6840-9756)
Institutions
- University of North Carolina at Chapel Hill (US)
- Tufts University (US)
- Johns Hopkins University (US)
- University of Pittsburgh (US)
- Johns Hopkins Medicine (US)
- Nuffield Orthopaedic Centre (GB)
- University of Oxford (GB)
- Southern California Clinical and Translational Science Institute (US)
- TriNetX (United States) (US)
Publication Details
- Journal
- Journal of the American Medical Informatics Association
- Published
- 2024-11-23
- DOI
- https://doi.org/10.1093/jamia/ocae299
- Citations
- 4
- Primary Topic
- Long-Term Effects of COVID-19
- Type
- article
- Field-Weighted Citation Impact
- 1.48
Funders
- Bill and Melinda Gates Foundation
- University of Miami
- University of Pennsylvania
- Northwestern University
- George Washington University
- Johns Hopkins University
- Case Western Reserve University
- Dartmouth College
- Pennsylvania State University
- Rush University
- University of South Carolina
- Penn State Clinical and Translational Science Institute
- Louisiana Clinical and Translational Science Center
- West Virginia Clinical and Translational Science Institute
- Stony Brook University
- Oregon Clinical and Translational Research Institute
- University of Colorado Denver
- Center for Clinical and Translational Science, University of Massachusetts
- Center for Clinical and Translational Science, Mayo Clinic
- Center for Clinical and Translational Sciences, University of Texas Health Science Center at Houston
- Irving Medical Center, Columbia University
- Translational Research Institute, University of Arkansas for Medical Sciences
- South Carolina Clinical and Translational Research Institute, Medical University of South Carolina
- National Center for Advancing Translational Sciences
- Colorado Clinical and Translational Sciences Institute