Endometriosis leading to frequent emergency department visits–women’s experiences and perspectives

Two main themes was identified which embodied the women's overall experience, grouped into: "Living with pain" and "Patients´ needs when seeking GED", with six underlying themes. Several women described their visit to the GED as a "lottery", as they never knew what kind of treatment they would receive. Being listened to was most important for the women. Individualized care plans did not exist for most of the women in this study, although they repeatedly needed to visit the GED.