Developing a prototype for federated analysis to enhance privacy and enable trustworthy access to COVID-19 research data
Creating federated networks requires extensive investment from a data governance, technology, training, resources, timing and funding perspective. For future initiatives, the establishment of a federated network should be built into medium to long term plans to provide researchers with a secure and robust data analysis platform to perform joint multi-site collaboration. Federated networks can unlock the enormous potential of national and international health datasets through enabling collaborative research that addresses critical public health challenges, whilst maintaining privacy and trustworthiness by preventing direct access to the source data.
Authors
- Simon Thompson (ORCID: https://orcid.org/0000-0001-6799-0705)
- Amy Racine
- Sarah Rees (ORCID: https://orcid.org/0000-0002-1939-0120)
- Meredith Brockway (ORCID: https://orcid.org/0000-0002-1024-2594)
- Meghan B. Azad (ORCID: https://orcid.org/0000-0002-5942-4444)
- Hamed Ghanbariadolat
- Eoghan Forde (ORCID: https://orcid.org/0000-0002-0933-8126)
- Aziz Sheikh (ORCID: https://orcid.org/0000-0001-7022-3056)
- Nicole Fiorentino (ORCID: https://orcid.org/0000-0001-5629-8051)
- Rachel Mulholland (ORCID: https://orcid.org/0000-0003-1020-3373)
- Matthew Retford
- David Ford (ORCID: https://orcid.org/0000-0001-6551-721X)
- Clara Calvert (ORCID: https://orcid.org/0000-0003-3272-1040)
- Karen J. Hunter (ORCID: https://orcid.org/0000-0003-2679-8471)
- Sarah J. Stock (ORCID: https://orcid.org/0000-0003-4308-856X)
- Jonas Häggström (ORCID: https://orcid.org/0000-0001-8304-9528)
- Jessica E. Miller (ORCID: https://orcid.org/0000-0002-1806-1894)
- Cynthia McNerney
- David Burgner (ORCID: https://orcid.org/0000-0002-8304-4302)
- Solmaz Eradat Oskoui
- Natalie Rodriguez (ORCID: https://orcid.org/0000-0001-6669-8737)
- Sharon Heys (ORCID: https://orcid.org/0000-0002-3007-644X)
- Rodrigo Barnes (ORCID: https://orcid.org/0000-0001-9204-5756)
- Chris Orton (ORCID: https://orcid.org/0000-0002-9561-2493)
- Neil Postlethwaite
- Helga Zoëga (ORCID: https://orcid.org/0000-0003-0761-9028)
- Anne Wozencraft
- Julie Kennedy
- Jeffrey Peng
Institutions
- University of London (GB)
- Royal Children's Hospital (AU)
- University of Iceland (IS)
- Alberta Children's Hospital (CA)
- Swansea University (GB)
- London School of Hygiene & Tropical Medicine (GB)
- Children's Hospital Research Institute of Manitoba (CA)
- Health Data Research UK (GB)
- Aridhia (United Kingdom) (GB)
- University of Manitoba (CA)
- Cytel (United States) (US)
- University of Edinburgh (GB)
Publication Details
- Journal
- International Journal of Medical Informatics
- Published
- 2024-11-20
- DOI
- https://doi.org/10.1016/j.ijmedinf.2024.105708
- Citations
- 2
- Primary Topic
- Privacy-Preserving Technologies in Data
- Type
- article
- Field-Weighted Citation Impact
- 0.69
Funders
- Bill and Melinda Gates Foundation
- Wellcome Trust
- Swansea University
- University of New South Wales
- Minderoo Foundation
- Medical Research Council