The FORWARD Psoriasis Registry: Patient-Reported Outcomes in a Novel Psoriasis Registry and Comparison of Traditional, Dermatologist-Led Enrollment With Web-Based Patient Enrollment
The FORWARD Psoriasis Registry rapidly enrolled a large, national cohort of participants with psoriasis, demonstrating feasibility of participant-driven data collection. We found important differences between participants enrolling through their clinician and self-enrolled participants, highlighting the need to collect real-world evidence to understand psoriasis regardless of access to clinical care.
Authors
- Sarah Lonowski
- J.Q. Del Rosso (ORCID: https://orcid.org/0000-0003-4215-7340)
- Rebecca Schumacher
- Alexis Ogdie (ORCID: https://orcid.org/0000-0002-4639-0775)
- Joel M. Gelfand (ORCID: https://orcid.org/0000-0003-3480-2661)
- William B. Song (ORCID: https://orcid.org/0000-0003-3922-1671)
- Kaleb D. Michaud (ORCID: https://orcid.org/0000-0002-5350-3934)
- Ryan M. Pearson (ORCID: https://orcid.org/0000-0002-7857-0973)
- Mark Kaufmann (ORCID: https://orcid.org/0009-0006-5979-0109)
Institutions
- Advanced Dermatology & Cosmetic Surgery (US)
- The National Databank for Rheumatic Diseases (US)
- Advanced Dermatology (US)
- University of Nebraska Medical Center (US)
- University of Pennsylvania (US)
- Icahn School of Medicine at Mount Sinai (US)
Publication Details
- Journal
- Journal of Psoriasis and Psoriatic Arthritis
- Published
- 2024-11-20
- DOI
- https://doi.org/10.1177/24755303241303089
- Primary Topic
- Psoriasis: Treatment and Pathogenesis
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Bristol-Myers Squibb
- National Institute of Arthritis and Musculoskeletal and Skin Diseases