Older Autistic People, Access and Experiences of Services, and the Factors That Affect This

This paper presents new empirical data obtained from interviews and focus groups on older (50 and over) autistic people's experiences of accessing a variety of services. The involvement of older autistic people and giving voice to their experiences was central to all aspects of the research process. This work makes a significant contribution to the scarce literature on older autistic people. In particular, it discusses the factors that act as barriers and enablers to the access to and productive use of services, the strategies used by participants to manage and improve their experiences, and the success of these strategies. It shows older autistic people as autonomous adults and active protagonists in their own lives, taking action to overcome the barriers they experience to accessing services on the same terms as everyone else, but that lack of understanding and support from service providers and the general public can undermine their strategies. Finally, this work provides a series of recommendations for service providers to improve (older) autistic people's service access and experiences.

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Publication Details

Journal
International Journal of Environmental Research and Public Health
Published
2024-11-19
DOI
https://doi.org/10.3390/ijerph21111535
Citations
4
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
2.56

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article

Older Autistic People, Access and Experiences of Services, and the Factors That Affect This

Marion Hersh, Panda Mery, Michael E. Dawson
4 citations
International Journal of Environmental Research and Public Health
Family and Disability Support Research
2.56
article

Older Autistic People, Access and Experiences of Services, and the Factors That Affect This

Marion Hersh, Panda Mery, Michael E. Dawson
article en
4 citations

Abstract

This paper presents new empirical data obtained from interviews and focus groups on older (50 and over) autistic people's experiences of accessing a variety of services. The involvement of older autistic people and giving voice to their experiences was central to all aspects of the research process. This work makes a significant contribution to the scarce literature on older autistic people. In particular, it discusses the factors that act as barriers and enablers to the access to and productive use of services, the strategies used by participants to manage and improve their experiences, and the success of these strategies. It shows older autistic people as autonomous adults and active protagonists in their own lives, taking action to overcome the barriers they experience to accessing services on the same terms as everyone else, but that lack of understanding and support from service providers and the general public can undermine their strategies. Finally, this work provides a series of recommendations for service providers to improve (older) autistic people's service access and experiences.

International Journal of Environmental Research and Public HealthVol. 21(11)
University of Glasgow (GB)
UK Research and Innovation
Openalex Percentile: Top 10%
Family and Disability Support Research
2.56
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