“I spend more time on the ecosystem than on the disease”: caring for the communicative loop with everyday ADM technology through maintenance and modification work

Automated decision-making (ADM) systems can be worn in and on the body for various purposes, such as for tracking and managing chronic conditions. One case in point is do-it-yourself open-source artificial pancreas systems, through which users engage in what is referred to as "looping"; combining continuous glucose monitors and insulin pumps placed on the body with digital communication technologies to develop an ADM system for personal diabetes management. The idea behind these personalized systems is to delegate decision-making regarding insulin to an algorithm that can make autonomous decisions. Based on interviews and photo diaries with Danish "loopers", this paper highlights two interrelated narratives of how users have to care for the loop by <i>maintaining</i> a stable communication circuit between body and ADM system, and by <i>modifying</i> the loop through analysis and reflection. It shows how the human takes turns with the ADM system through practical doings and anticipation to safeguard continuous management of chronic disease.

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Publication Details

Journal
AI & Society
Published
2024-11-15
DOI
https://doi.org/10.1007/s00146-024-02109-5
Primary Topic
Innovative Human-Technology Interaction
Type
article
Field-Weighted Citation Impact
0.00

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article

“I spend more time on the ecosystem than on the disease”: caring for the communicative loop with everyday ADM technology through maintenance and modification work

Henriette Langstrup, Sne Scott Hansen
AI & Society
Innovative Human-Technology Interaction
article

“I spend more time on the ecosystem than on the disease”: caring for the communicative loop with everyday ADM technology through maintenance and modification work

Henriette Langstrup, Sne Scott Hansen
article en

Abstract

Automated decision-making (ADM) systems can be worn in and on the body for various purposes, such as for tracking and managing chronic conditions. One case in point is do-it-yourself open-source artificial pancreas systems, through which users engage in what is referred to as "looping"; combining continuous glucose monitors and insulin pumps placed on the body with digital communication technologies to develop an ADM system for personal diabetes management. The idea behind these personalized systems is to delegate decision-making regarding insulin to an algorithm that can make autonomous decisions. Based on interviews and photo diaries with Danish "loopers", this paper highlights two interrelated narratives of how users have to care for the loop by <i>maintaining</i> a stable communication circuit between body and ADM system, and by <i>modifying</i> the loop through analysis and reflection. It shows how the human takes turns with the ADM system through practical doings and anticipation to safeguard continuous management of chronic disease.

AI & SocietyVol. 40(5)
University of Copenhagen (DK), IT University of Copenhagen (DK)
Københavns Universitet, H2020 European Research Council
Openalex Percentile: Top 80%
Innovative Human-Technology Interaction
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