Effects of internet-based health education on patients with acute intermittent porphyria
This study validated that health education effectively reduced the frequency and severity of acute attacks in AIP patients while enhancing their mental health status and quality of life. Internet-based health education emerges as a practical and productive strategy for AIP patients.
Authors
- Xin Zhao (ORCID: https://orcid.org/0000-0002-7190-423X)
- Pei Li (ORCID: https://orcid.org/0000-0003-1837-2753)
- Songyun Zhang (ORCID: https://orcid.org/0000-0001-5588-1034)
- Jie Li (ORCID: https://orcid.org/0009-0006-0973-2699)
- Yuhan Liu (ORCID: https://orcid.org/0000-0003-2912-750X)
- Zhao Lanlan
Institutions
- Hebei Medical University (CN)
- Second Hospital of Hebei Medical University (CN)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2024-11-15
- DOI
- https://doi.org/10.1186/s13023-024-03440-2
- Primary Topic
- Porphyrin Metabolism and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00