Codesign and evaluation of advanced therapeutic information resources for and with families of children with neurological conditions: a mixed methods cross-sectional study
This study and its results are aligned with, and supports, the needs and preferences of caregivers of children with neurological conditions, promoting information provision, healthcare engagement and clinical decision-making. These resources will form a foundation for accurate and contemporary scientific knowledge that is distilled and available to a wide range of stakeholders.
Authors
- Susan Woolfenden (ORCID: https://orcid.org/0000-0002-6954-5071)
- Didu Kariyawasam (ORCID: https://orcid.org/0000-0002-4176-4010)
- Kristine A Elias Concepcion
- Kate Hetherington (ORCID: https://orcid.org/0000-0002-5457-5462)
- Michelle A. Farrar (ORCID: https://orcid.org/0000-0002-4472-0902)
- Russell C. Dale (ORCID: https://orcid.org/0000-0002-2495-1826)
- Elizabeth E. Palmer (ORCID: https://orcid.org/0000-0003-1844-215X)
- Shekeeb S. Mohammad (ORCID: https://orcid.org/0000-0003-1219-4781)
- Christian Meagher (ORCID: https://orcid.org/0009-0006-3157-3719)
Institutions
- The University of Sydney (AU)
- Children's Hospital at Westmead (AU)
- UNSW Sydney (AU)
- Sydney Children's Hospital (AU)
- Sydney Children’s Hospitals Network (AU)
Publication Details
- Journal
- Archives of Disease in Childhood
- Published
- 2024-11-08
- DOI
- https://doi.org/10.1136/archdischild-2024-327914
- Citations
- 1
- Primary Topic
- Pharmaceutical studies and practices
- Type
- article
- Field-Weighted Citation Impact
- 1.11
Funders
- Cerebral Palsy Alliance