A Qualitative Investigation into the Determinants of Unfulfilled Needs in Caregivers of Patients with Phenylketonuria
The unfulfilled needs of caregivers of patients with phenylketonuria primarily manifest across four dimensions. Greater emphasis on addressing these needs is warranted, necessitating increased attention to patients with phenylketonuria and their caregivers. Specifically, the focus should be directed toward addressing their emotional requirements, along with proactive development of the medical service infrastructure. Such measures are imperative for reducing unfulfilled needs among caregivers of patients and enhancing their prognosis.
Authors
- Yudan Liu (ORCID: https://orcid.org/0000-0002-7496-7033)
- Yongchao Hou (ORCID: https://orcid.org/0000-0002-2068-4978)
- Hua Zhao (ORCID: https://orcid.org/0000-0002-7876-804X)
- M. J. Guo (ORCID: https://orcid.org/0000-0002-8770-0856)
- Li Li (ORCID: https://orcid.org/0000-0003-2342-3658)
- Xiaoyun Wang (ORCID: https://orcid.org/0000-0001-5174-8076)
- Liang Yu (ORCID: https://orcid.org/0000-0003-1007-3951)
- Yu-Juan Zheng (ORCID: https://orcid.org/0000-0002-8042-7770)
Institutions
- Shanxi Medical University (CN)
- Shanxi University (CN)
- Jinzhong University (CN)
- Shanxi Provincial Children's Hospital (CN)
- Shanxi Provincial People’s Hospital (CN)
Publication Details
- Journal
- Patient Preference and Adherence
- Published
- 2024-11-01
- DOI
- https://doi.org/10.2147/ppa.s481857
- Primary Topic
- Metabolism and Genetic Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00