Using photovoice to investigate patient experiences of lupus nephritis in Canada
Participants reported a substantial psychosocial burden associated with altered life trajectories, the dual burden of LN and the associated medication journey, and the conflicting role of the physical environment. The need for flexibility (ie, from employers, themselves) is an essential component of navigating altered life trajectories.
Authors
- Kim Cheema
- Megan R.W. Barber (ORCID: https://orcid.org/0000-0003-1055-1335)
- Adrian Boucher
- Ann E. Clarke (ORCID: https://orcid.org/0000-0002-3112-9646)
- Francesca S. Cardwell (ORCID: https://orcid.org/0000-0002-7393-466X)
- S. George (ORCID: https://orcid.org/0000-0001-6274-9357)
- Susan J. Elliott (ORCID: https://orcid.org/0000-0001-5514-1116)
Institutions
- University of Waterloo (CA)
- University of Calgary (CA)
Publication Details
- Journal
- Lupus Science & Medicine
- Published
- 2024-11-01
- DOI
- https://doi.org/10.1136/lupus-2024-001265
- Citations
- 1
- Primary Topic
- Systemic Lupus Erythematosus Research
- Type
- article
- Field-Weighted Citation Impact
- 0.47