Multidimensional and Longitudinal Impact of a Genetic Diagnosis for Critically Ill Infants
A genetic diagnosis is highly desired by parents in the NICU, though waning interest over time for undiagnosed families may reflect parental emotional adaptation and acceptance. Additional supports are needed to improve perceived quality of life.
Authors
- Monica H. Wojcik (ORCID: https://orcid.org/0000-0002-8162-5031)
- Hadley Stevens Smith (ORCID: https://orcid.org/0000-0003-1247-6535)
- Ingrid A. Holm (ORCID: https://orcid.org/0000-0003-4712-8821)
- Henry A. Feldman (ORCID: https://orcid.org/0000-0002-1748-0894)
- Maya C. del Rosario (ORCID: https://orcid.org/0000-0001-7103-3326)
Institutions
- Boston Children's Hospital (US)
- Harvard University (US)
- Harvard Pilgrim Health Care (US)
Publication Details
- Journal
- PEDIATRICS
- Published
- 2024-11-08
- DOI
- https://doi.org/10.1542/peds.2024-068197
- Citations
- 3
- Primary Topic
- Neonatal Respiratory Health Research
- Type
- article
- Field-Weighted Citation Impact
- 1.26
Funders
- Sanofi
- National Institutes of Health
- Eunice Kennedy Shriver National Institute of Child Health and Human Development