Coaching newly diagnosed people with multiple sclerosis
<h3>Introduction</h3> Rapid intervention to facilitate secondary prevention is key for people with multiple sclerosis (pwMS). However, the regular pathway for diagnosis and management in the UK lacks urgency, which may adversely impact on pwMS’ adjustment to their new diagnosis and their decision making. Evidence suggests emotional support of pwMS during this early phase may be of particular importance for rapid disease modifying treatment (DMT) and beneficial lifestyle changes. <h3>Aims</h3> To report outcomes of a workshop focussing on sustainable coaching for newly diagnosed pwMS. <h3>Methods</h3> A two-day workshop, taking place in February 2024, will be led by a team experienced in coaching pwMS early after diagnosis. Modules will include (i) early interactions between healthcare professionals (HCPs) and pwMS, (ii) dealing with resistance, (iii) emotional care pathway development, (iv) goal setting, (v) role of quality of life trustees, and (vi) measuring success. <h3>Results</h3> Approximately 35 HCPs will participate in this first of its kind workshop, which will inform similar future training events. <h3>Conclusion</h3> The urgency with which pwMS should enter a holistic care setting, including early DMT, produces new challenges for HCPs and the NHS. Efficient coaching may enable pwMS to rapidly adapt to MS thereby minimising its detrimental effects on their quality of life.
Authors
- Mathews Joela
- M Karen
- Klaus Schmierer (ORCID: https://orcid.org/0000-0002-9293-8893)
- Anat Achiron (ORCID: https://orcid.org/0000-0002-2020-3126)
- Baker David
- das Nair Roshan
- Stennett Andrea
- Kotev Alon
Institutions
- University of Nottingham (GB)
- Tel Aviv University (IL)
- Queen Mary University of London (GB)
- SINTEF (NO)
- Barts Health NHS Trust (GB)
- Sheba Medical Center (IL)
- Royal London Hospital (GB)
- SINTEF Digital
Publication Details
- Published
- 2024-11-01
- DOI
- https://doi.org/10.1136/jnnp-2024-abn.251
- Primary Topic
- Interprofessional Education and Collaboration
- Type
- article
- Field-Weighted Citation Impact
- 0.00