An assessment of the European Patient Summary for clinical research: a case study in cardiology
The EHDS is a transformative initiative to establish a European health data ecosystem that supports healthcare delivery and clinical research. Our comparative analysis demonstrates that, with minor extensions, these guidelines have significant potential to facilitate access to electronic healthcare record data for the secondary use, particularly in training AI models. We advocate for the adoption of an International Patient Summary format as a semantically interoperable core set of data elements, which will enhance global clinical research efforts and improve patient outcomes through precision medicine.
Authors
- Rebecca Baker
- Polyxeni Gkontra (ORCID: https://orcid.org/0000-0001-8828-6143)
- Rebecca Kush
- Catherine Chronaki (ORCID: https://orcid.org/0000-0001-6638-8448)
- Ali Anıl Sınacı (ORCID: https://orcid.org/0000-0003-4397-3382)
- Gökçe Banu Laleci Ertürkmen (ORCID: https://orcid.org/0000-0002-6201-3849)
- Rhonda Facile (ORCID: https://orcid.org/0000-0002-6388-1795)
- Tuncay Namlı (ORCID: https://orcid.org/0000-0003-1157-8994)
- Karim Lekadir (ORCID: https://orcid.org/0000-0002-9456-1612)
- Machteld Boonstra (ORCID: https://orcid.org/0000-0001-7550-0489)
Institutions
- Institució Catalana de Recerca i Estudis Avançats (ES)
- Health Level Seven International (BE)
- Software Research and Development Consulting (TR)
- Clinical Research Consortium (US)
- Amsterdam University Medical Centers (NL)
- Universitat de Barcelona (ES)
- University of Amsterdam (NL)
Publication Details
- Journal
- Frontiers in Medicine
- Published
- 2024-11-07
- DOI
- https://doi.org/10.3389/fmed.2024.1481551
- Citations
- 2
- Primary Topic
- Biomedical Text Mining and Ontologies
- Type
- article
- Field-Weighted Citation Impact
- 0.47
Funders
- European Commission
- HORIZON EUROPE Framework Programme