NATIONAL REGISTRY SYSTEM FOR HOME MECHANICAL VENTILATION SUPPORT IN CHILDREN: FIRST DATA FROM TURKEY

<bold>Background:</bold> Neonatal and pediatric intensive care advances have enhanced patient survival rates, necessitating respiratory support for chronic respiratory failure cases. The Turkish National Pediatric Patients Receiving Home Mechanical Ventilation (HMV) Support Registration System was established in 2023. This study presents the registry's initial findings. <bold>Methods:</bold> In this cross-sectional study, the data was obtained from the registry and compared between invasive ventilation (IV) and non-invasive ventilation (NIV) groups. <bold>Results:</bold> The study included 952 patients registered from 23 centers with a mean (±SD) age of 7.3 (±5.1) years. IV support was observed in 51.1% of patients. There was a significant difference in age, nutrition, mobility status and education were observed between the subgroups. The largest patient group had neuromuscular disease, with spinal muscular atrophy being the most common primary diagnosis (15.7%). Most of the caregivers (78.7% in the NIV group and 93.8% in the IV group) received formal training before the initiation of HMV. <bold>Conclusion:</bold> Turkey's first registry for pediatric HMV patients has been introduced to address mobility and education issues for these patients in the country. While most caregivers have received training before discharge, further efforts are needed to ensure a 100% training rate.

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Published
2024-09-14
DOI
https://doi.org/10.1183/13993003.congress-2024.oa4656
Primary Topic
Respiratory Support and Mechanisms
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article
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article

NATIONAL REGISTRY SYSTEM FOR HOME MECHANICAL VENTILATION SUPPORT IN CHILDREN: FIRST DATA FROM TURKEY

Tuğba Şişmanlar Eyüboğlu, Nilay Baş İkizoğlu, Haluk Cezmi Çokuğraş, Gülten Öztürk et al.
Respiratory Support and Mechanisms
article

NATIONAL REGISTRY SYSTEM FOR HOME MECHANICAL VENTILATION SUPPORT IN CHILDREN: FIRST DATA FROM TURKEY

Tuğba Şişmanlar Eyüboğlu, Nilay Baş İkizoğlu, Haluk Cezmi Çokuğraş, Gülten Öztürk, Bahar Girgin Dindar, Ali Özdemir, Saniye Girit, Gizem Özcan, Yakup Canıtez, Mina Hızal, Nagehan Emiralioğlu, Erdem Basaran, Figen Gülen, Güzin Cinel, Tuğba Ramaslı Gürsoy, Ayşe Ayzıt Kılınç, Yasemi̇n Gökdemi̇r, M. K. Selcuk, Fazi̇let Karakoç, Erkan Çakır, Birce Sunman, Ayşen Başaran, Gökçen Ünal, Melih Hangül, Ela Erdem Eralp, Sinem Can Oksay, Bulent Taner Karadag, Nazan Çobanoğlu, Ebru Köstereli, Sedat Öktem, Azer Kılıç Başkan, Velat Şen, Pınar Ergenekon, Secahattin Bayav, Zeynep Seda Uyan, Ali Özgür Ersoy, Füsun Ünal, Beste Özsezen, Ayşe Tana Aslan, Sevgi Pekcan, Hüseyin Arslan, Merve Korkmaz, Özlem Keskin, Yeliz Koç, Raziye Atan, Neval Meti̇n Çakar, Suat Savas, Harun Mamaç, Hakan Yazgan, Zeynep Efşan Başer
article en

Abstract

<bold>Background:</bold> Neonatal and pediatric intensive care advances have enhanced patient survival rates, necessitating respiratory support for chronic respiratory failure cases. The Turkish National Pediatric Patients Receiving Home Mechanical Ventilation (HMV) Support Registration System was established in 2023. This study presents the registry's initial findings. <bold>Methods:</bold> In this cross-sectional study, the data was obtained from the registry and compared between invasive ventilation (IV) and non-invasive ventilation (NIV) groups. <bold>Results:</bold> The study included 952 patients registered from 23 centers with a mean (±SD) age of 7.3 (±5.1) years. IV support was observed in 51.1% of patients. There was a significant difference in age, nutrition, mobility status and education were observed between the subgroups. The largest patient group had neuromuscular disease, with spinal muscular atrophy being the most common primary diagnosis (15.7%). Most of the caregivers (78.7% in the NIV group and 93.8% in the IV group) received formal training before the initiation of HMV. <bold>Conclusion:</bold> Turkey's first registry for pediatric HMV patients has been introduced to address mobility and education issues for these patients in the country. While most caregivers have received training before discharge, further efforts are needed to ensure a 100% training rate.

Dicle University (TR), Ministry of Health (TR), Bursa Uludağ Üni̇versi̇tesi̇ (TR), Koç University (TR), Ankara University (TR), Bilkent University (TR), Akdeniz University (TR), Bezmiâlem Vakıf Üniversitesi (TR), Istanbul Medipol University (TR), Ege University (TR), Dr. Behçet Uz Çocuk Hastalıkları Hastanesi (TR), Gaziantep Children's Hospital (TR), Necmettin Erbakan University (TR), Antalya Eğitim ve Araştırma Hastanesi (TR), Istanbul University-Cerrahpaşa (TR), Istinye University (TR), Education Training And Research (US), Kayseri Eğitim ve Araştırma Hastanesi (TR), Mersin Üniversitesi (TR), Istanbul Medeniyet University (TR), Gaziantep University (TR), Hacettepe University (TR), Istanbul University (TR), Marmara University (TR), Erciyes University (TR), Gazi University (TR)
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