Objectives for algorithmic decision-making systems in childhood asthma: perspectives of children, parents, and physicians.
<bold>Objectives:</bold> To identify with children, parents and physicians the objectives to be used as parameters for algorithmic decision-making systems (ADMS) adapting treatments in childhood asthma. <bold>Methods:</bold> We first conducted a qualitative study based on semi-structured interviews to explore the objectives that children aged 8 to 17 years, their parents and their physicians seek to achieve when taking/giving/prescribing a treatment for asthma. Following the grounded theory approach, each interview was independently coded by 2 researchers; reconciled codes were used to assess code frequency, categories were defined, and the main objectives identified. We then conducted a quantitative study based on questionnaires using these objectives to determine how children/parents/physicians ranked these objectives and whether their responses were aligned. <bold>Results:</bold> We interviewed 71 participants (31 children, 30 parents and 10 physicians) in the qualitative study, and identified seven objectives associated with treatment uptake and five objectives associated with treatment modalities. We included 291 participants (137 children, 137 parents and 17 physicians) in the quantitative study. We found little correlation between child, parent, and physician scores for each of the objectives. Each child's asthma history influenced the choice of scores assigned to each objective by the child, parents and physician. <bold>Conclusion:</bold> The identified objectives are relevant to athma's management. They can be incorporated as parameters for future ADMS. Shared decision making is essential to achieve consensus among children, parents and physicians when choosing the weight to assign to each of these objectives.
Authors
- Christophe Delacourt (ORCID: https://orcid.org/0000-0002-0007-7150)
- Guillaume Lezmi (ORCID: https://orcid.org/0000-0001-7742-5523)
- Alexandra Pirojoc
- David Drummond (ORCID: https://orcid.org/0000-0002-7324-4992)
- Apolline Gonsard (ORCID: https://orcid.org/0009-0002-1943-6237)
- Flore Amat
- Nadia Nathan (ORCID: https://orcid.org/0000-0001-5149-7975)
- Stéphanie Wanin (ORCID: https://orcid.org/0000-0001-6656-3461)
- Blandine Prévost (ORCID: https://orcid.org/0000-0002-7391-0430)
- Rola Abou Taam (ORCID: https://orcid.org/0000-0003-2791-2707)
- Johan Personnic
- Omar Masrour
Institutions
- Hôpital Necker-Enfants Malades (FR)
- Université Paris Cité (FR)
- CHU Ambroise Paré (BE)
- Sorbonne Université (FR)
- Institut Necker Enfants Malades (FR)
- Hôpital Armand-Trousseau (FR)
- Hôpital Cochin (FR)
- Assistance Publique – Hôpitaux de Paris (FR)
- Hôpital Robert-Debré (FR)
- Hôpital Ambroise-Paré (FR)
Publication Details
- Published
- 2024-09-14
- DOI
- https://doi.org/10.1183/13993003.congress-2024.pa794
- Primary Topic
- Health, Environment, Cognitive Aging
- Type
- article
- Field-Weighted Citation Impact
- 0.00