Fostering independence: A comprehensive understanding of youth's experiences throughout the stages of healthcare transition in common chronic conditions.

<bold>Background:</bold>. During adolescence, the care for adolescents and young adults (AYAs) with chronic conditions is expected to transfer from pediatric to adult care, where a shift in responsibilities occurs in care management. Up to 40% of AYAs lose access to medical care after their transfer to adult care. This study aims to provide an in-depth understanding of AYAs’ experiences during the transition towards adulthood, whilst living with a chronic condition (e.g. asthma) as a starting point to the development of a transition program. <bold>Methods:</bold>. A qualitative study was conducted using semi-structured interviews, complemented by photovoice. Study participants were AYAs, 15-21 years old, diagnosed with asthma, type 1 diabetes, and/or obesity, and were either facing the upcoming transfer or had already experienced the transfer event. Interviews were audio-taped, pseudonymized and transcribed verbatim. Interview and image data were thematically analyzed using NVIVO. <bold>Results:</bold>. A total of 18 AYAs participated, of whom seven completed photovoice. Five themes were identified, with transition being an individual process as the overarching theme in findings. Additional themes identified were: setting expectations, wanting a voice in transition, trust is key and the importance of a support system. <bold>Conclusion</bold>. Transition experiences, needs and expectations seem to encompass different chronic conditions. The current study highlights the need for continuity of care in transition, by providing an overview of insights pre-, per-, and post-transfer.