Are we speaking the same language? Nomenclature differences between patients and healthcare providers describing aspects of bronchiectasis: a latent content analysis

<bold>Background:</bold> Previously thought of as an orphan disease, recent advances in diagnostics have led to greater recognition of bronchiectasis. Management of bronchiectasis follows a patient-centred approach, but little is known about patient friendly language in this group. <bold>Aims:</bold> This study aims to identify whether there are differences in common phrases relating to aspects of bronchiectasis. <bold>Methods:</bold> A qualitative data set comprising interviews with 10 patients with bronchiectasis and 8 healthcare professionals was analysed retrospectively (Ethical approval (HCRW): REC No.22/YH/0234). The principles of a summative approach to latent content analysis were followed. <bold>Results:</bold> Some differences in nomenclature between patients and staff were observed. Staff were more likely to describe “fatigue”, whereas patients described being “tired”. Staff talked about “exacerbations”, but this word was not used by any patients, who were more likely to say they were “sick” or “unwell”. Staff mentioned sputum, but patients were more likely to say “stuff” or “bugs”. There were some similarities when describing the challenges of dealing with bronchiectasis, with difficult/difficulty being the most popular choice. <bold>Conclusion:</bold> The results may help inform the development of communication tools to manage health literacy barriers and improve patient care in bronchiectasis.