Patients with advanced COPD struggle to access the necessary support to manage daily life in a strained healthcare system

<bold>Main text:</bold> The traditional organization of respiratory outpatient clinics is evolving towards a responsive approach to meet the dynamic needs of the patients. However, gaps persist in understanding patients’ perspectives and needs, particularly concerning self-management strategies and interaction. <bold>Aims:</bold> To explore the self-management strategies of Danish patients living with advanced COPD, particularly focusing on interactions with the respiratory outpatient clinic. <bold>Methods:</bold> A qualitative study. Data were collected through interviews with eleven patients with advanced COPD and thematically analyzed following the method described by Braun & Clarke (2014). <bold>Results:</bold> The overarching theme "In a strained Healthcare System patients with COPD struggle to access needed support to be able to self-manage their disease" was revealed and supported by three main themes: 1) Only physical symptoms provide legal access to the respiratory outpatient clinic 2) For patients, measured values reflect health status and well-being 3) Healthcare professionals' skills and not the mode of contact matters to the patients. <bold>Conclusions:</bold> Findings emphasize the need for a patient-centered approach recognizing holistic needs and barriers to self-management. Healthcare professionals should understand the strained system's impact on patient behavior, noting that advanced COPD patients might avoid burdening the system, potentially neglecting symptoms, and risking disease progression.

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Published
2024-09-14
DOI
https://doi.org/10.1183/13993003.congress-2024.pa3225
Primary Topic
Chronic Obstructive Pulmonary Disease (COPD) Research
Type
article
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article

Patients with advanced COPD struggle to access the necessary support to manage daily life in a strained healthcare system

Dorthe Gaby Bové, Marie Lavesen, M Paine
Chronic Obstructive Pulmonary Disease (COPD) Research
article

Patients with advanced COPD struggle to access the necessary support to manage daily life in a strained healthcare system

Dorthe Gaby Bové, Marie Lavesen, M Paine
article en

Abstract

<bold>Main text:</bold> The traditional organization of respiratory outpatient clinics is evolving towards a responsive approach to meet the dynamic needs of the patients. However, gaps persist in understanding patients’ perspectives and needs, particularly concerning self-management strategies and interaction. <bold>Aims:</bold> To explore the self-management strategies of Danish patients living with advanced COPD, particularly focusing on interactions with the respiratory outpatient clinic. <bold>Methods:</bold> A qualitative study. Data were collected through interviews with eleven patients with advanced COPD and thematically analyzed following the method described by Braun & Clarke (2014). <bold>Results:</bold> The overarching theme "In a strained Healthcare System patients with COPD struggle to access needed support to be able to self-manage their disease" was revealed and supported by three main themes: 1) Only physical symptoms provide legal access to the respiratory outpatient clinic 2) For patients, measured values reflect health status and well-being 3) Healthcare professionals' skills and not the mode of contact matters to the patients. <bold>Conclusions:</bold> Findings emphasize the need for a patient-centered approach recognizing holistic needs and barriers to self-management. Healthcare professionals should understand the strained system's impact on patient behavior, noting that advanced COPD patients might avoid burdening the system, potentially neglecting symptoms, and risking disease progression.

Roskilde University (DK), Frederiksberg Hospital (DK)
Openalex Percentile: Top 63%
Chronic Obstructive Pulmonary Disease (COPD) Research
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