The differing experiences of people living with COPD during the Covid-19 pandemic: an interview study

<bold>Introduction:</bold> The pandemic affected millions globally, including those with chronic obstructive pulmonary disease (COPD). However, little is known about the views of people with COPD and their carers on the effect on their lives and responses to symptom worsening. <bold>Methods:</bold> Semi-structured phone interviews were conducted in a multicentre qualitative study. Participants were recruited purposively in primary and secondary care. Interviews were analysed using reflexive thematic analysis. Descriptive data are presented as mean [SD]. <bold>Results:</bold> 40 COPD patients were interviewed (21 female; 28 white; age 69 [8.1] years, COPD duration 11.3 [8.3] years. Seven carers (6 female, 6 white) were interviewed. Two themes were identified: i) Lives interrupted: manageable for some, whilst very difficult for others, ii) Inequitable access to clinicians affects help-seeking for worsened symptoms. These experiences during the pandemic restrictions highlight the ongoing inequity in living conditions and access to clinicians of those living with COPD. The Breathing Space concept describes how well people can live with breathlessness, one of the key symptoms of COPD. These data suggest the importance of incorporating a further factor related to the context that people live in to the Breathing Space concept, to give greater explanatory power. <bold>Discussion:</bold> The pandemic and its restrictions had a differential effect on people living with COPD and their carers. This was due to their degree of social support, their physical environment and their access to and relationship with their clinicians. All of these factors continue to affect the lives of people with COPD and their health and responses to exacerbations.

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Published
2024-09-14
DOI
https://doi.org/10.1183/13993003.congress-2024.pa3245
Primary Topic
Chronic Obstructive Pulmonary Disease (COPD) Research
Type
article
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article

The differing experiences of people living with COPD during the Covid-19 pandemic: an interview study

Judith A. Cohen, Gary Hellens, Hana Müllerová, Tamsin Morris et al.
Chronic Obstructive Pulmonary Disease (COPD) Research
article

The differing experiences of people living with COPD during the Covid-19 pandemic: an interview study

Judith A. Cohen, Gary Hellens, Hana Müllerová, Tamsin Morris, Michael G. Crooks, Richard Russell, Anne Hutchinson, Yang Xu, Helena Cummings, Kay Roy, Omar Usmain, Sarah Macfadyen
article en

Abstract

<bold>Introduction:</bold> The pandemic affected millions globally, including those with chronic obstructive pulmonary disease (COPD). However, little is known about the views of people with COPD and their carers on the effect on their lives and responses to symptom worsening. <bold>Methods:</bold> Semi-structured phone interviews were conducted in a multicentre qualitative study. Participants were recruited purposively in primary and secondary care. Interviews were analysed using reflexive thematic analysis. Descriptive data are presented as mean [SD]. <bold>Results:</bold> 40 COPD patients were interviewed (21 female; 28 white; age 69 [8.1] years, COPD duration 11.3 [8.3] years. Seven carers (6 female, 6 white) were interviewed. Two themes were identified: i) Lives interrupted: manageable for some, whilst very difficult for others, ii) Inequitable access to clinicians affects help-seeking for worsened symptoms. These experiences during the pandemic restrictions highlight the ongoing inequity in living conditions and access to clinicians of those living with COPD. The Breathing Space concept describes how well people can live with breathlessness, one of the key symptoms of COPD. These data suggest the importance of incorporating a further factor related to the context that people live in to the Breathing Space concept, to give greater explanatory power. <bold>Discussion:</bold> The pandemic and its restrictions had a differential effect on people living with COPD and their carers. This was due to their degree of social support, their physical environment and their access to and relationship with their clinicians. All of these factors continue to affect the lives of people with COPD and their health and responses to exacerbations.

AstraZeneca (United Kingdom) (GB), University College London Hospitals NHS Foundation Trust (GB), King's College London (GB), University of Hull (GB), Hull College (GB), Hull University Teaching Hospitals NHS Trust (GB), British Lung Foundation (GB), ImageCat (United Kingdom) (GB), The London College (GB), University College London (GB), Imperial College London (GB)
Good health and well-being
Openalex Percentile: Top 64%
Chronic Obstructive Pulmonary Disease (COPD) Research
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