National Survey on Pediatric Respiratory Physiotherapy Units: Primary Ciliary Dyskinesia and Non-CF Bronchiectasis

<bold>Background:</bold> there is a lack of data concerning the organization and characteristics of Italian pediatric physiotherapy units in centers in charge of patients with primary ciliary dyskinesia (PCD) and non-Cystic Fibrosis bronchiectasis (NCFB). We aimed to identify Italian pediatric centers with a respiratory therapy team and to determine their characteristics and all services offered. <bold>Methods:</bold> a national descriptive study based on a survey questionnaire, investigating the distribution, characteristics of the centers and services provided. <bold>Results:</bold> 39 heterogeneously distributed centers responded (97.5%), of which 29 have a physiotherapy service. 19/29 centers had a respiratory unit. Respiratory therapy was provided in different care settings. The interventions provided by respiratory therapists involved not only airway clearance but also: pulmonary function and functional tests, educational training, management of workout programs and other interventions (non-invasive ventilation and oxygen titration), performed in different percentage. Therapists are involved in activities as telemedicine, research projects, and prescription of medical devices together with physicians. <bold>Conclusions:</bold> this study provides an overall view of the national distribution and organization of physiotherapy departments and opens query on the clinical approach of pediatric patients affected by PCD and NCFB. The role of respiratory therapists seems to be fragmented, performing various specialized techniques depending on center’s needs. This is the first step to improve a national network of physioterapists.