Privacy during pandemics: Attitudes to public use of personal data

In this paper we investigate people’s attitudes to privacy and sharing of personal data when used to help society combat a contagious disease, such as COVID-19. Through a two-wave survey, we investigate the role of personal characteristics, and the effect of information, in shaping privacy attitudes. By conducting the survey in Norway and Sweden, which adopted very different strategies to handle the COVID-19 pandemic, we analyze potential differences in privacy attitudes due to policy changes. We find that privacy concern is negatively correlated with allowing public use of personal data. Trust in the entity collecting data and collectivist preferences are positively correlated with this type of data usage. Providing more information about the public benefit of sharing personal data makes respondents more positive to the use of their data, while providing additional information about the costs associated with data sharing does not change attitudes. The analysis suggests that stating a clear purpose and benefit for the data collection makes respondents more positive about sharing. Despite very different policy approaches, we do not find any major differences in privacy attitudes between Norway and Sweden. Findings are also similar between the two survey waves, suggesting a minor role for contextual changes. • We study attitudes towards sharing private data for disease control, like COVID-19. • We investigate how personal characteristics influence such privacy attitudes. • Through a survey experiment we explore reactions to differences in information. • More information on the benefit of sharing personal data boosts positive attitudes. • Comparing survey responses from Norway and Sweden we find minor differences.