Fostering patients' participation in oncology research by developing psychological empowerment and a sense of community
At the end of this analysis, we can conclude that the 'patient-researcher' training intervention fulfilled its two objectives. First, it provided the knowledge and skills necessary for the implementation of a community-based research study and helped participants feel that they could take part in the different stages of such a study. Second, it initiated the construction of an alliance between 'lived experience' experts and scientific experts.
Authors
- Guillemette Jacob
- Tienhan Sandrine Dabakuyo‐Yonli (ORCID: https://orcid.org/0000-0002-8191-1222)
- Myriam Pannard (ORCID: https://orcid.org/0000-0003-4898-1306)
- Sophie Parnalland
- Charlotte Bauquier
- Marie Préau (ORCID: https://orcid.org/0000-0002-6239-1671)
- Françis Guillemin (ORCID: https://orcid.org/0000-0002-9860-7024)
- Amandine Andrin
- Julien Biaudet
- Gwenaëlle Paret
Institutions
- United States Department of Defense (US)
- Inserm (FR)
- Université Lumière Lyon 2 (FR)
- Université Paris-Seine (FR)
- Centre Georges François Leclerc (FR)
- Centre Hospitalier Régional et Universitaire de Nancy (FR)
- Centre Léon Bérard (FR)
- Cancéropôle Lyon Auvergne-Rhône-Alpes (FR)
Publication Details
- Journal
- Journal of Epidemiology and Population Health
- Published
- 2024-10-31
- DOI
- https://doi.org/10.1016/j.jeph.2024.202781
- Citations
- 1
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.85