Data governance challenges on smart home involving multiple research sites

Abstract Background The development of Ambient Assisted Living (AAL) technology has great potential for ubiquitous health monitoring through collaboration between multiple research sites, but its use poses significant challenges to data governance. This study aims to investigate data governance challenges arising when smart home data flows across different research sites. Methods A four-analytic-dimension method was used to identify potential data-related issues that may occur when heterogeneous smart home data moves around multiple research sites. These dimensions include data domain, stakeholders, value, and governance goal. Results Data domain has difficulty in categorizing new data types generated by analytical models without a specified agreement, and determining the regulations for varying levels of anonymization and privacy protection is unclear in the AAL research field. Stakeholders in the AAL project may hold have different norms and practices for data use. Although some common values may be shared, such as improving the quality of homecare, conflicts may still arise and need to be regulated by data governance. Shifting AAL data between stakeholders may reduce its value, as different stakeholders may have varying interests. For instance, removing identifiable information from data to preserve privacy may reduce its value for researchers exploring individuals’ activity patterns. Governance goals are objectives for maintaining and facilitating data. While some governance goals can be widely acknowledged and shared, such as ensuring data security and privacy, conflicts may still exist over others, such as data access. Conclusions The big data generated by smart home technology highlights the need to develop proper data governance models to regulate data. This study’s implications include a better understanding of potential data-related challenges when data flows around multiple research sites, helping policymakers set up suitable data governance models. Key messages • AAL tech for health monitoring poses data governance challenges due to varying stakeholder norms and values. • Proper data governance models need to be developed for AAL data as it remains challenges in data domain, stakeholders, value, and governance goal.