Patient-Reported Indicator Surveys (PaRIS): making the case for co-development and adaptation to national contexts

Abstract In this presentation we discuss the early implementation of the OECD’s Patient-Reported Indicator Surveys (PaRIS) in primary care, highlighting the importance of co-development and national adaptation. The PaRIS initiative focuses on collecting patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) from individuals with chronic conditions and their primary care providers. This data collection is critical as populations age and the prevalence of chronic conditions increases, necessitating health systems that prioritize patient-centered care. The co-development process of the PaRIS survey involved extensive international collaboration, incorporating feedback from policymakers, healthcare providers, patients, and academics, thereby enhancing the relevance and ownership of the project. An example of successful stakeholder engagement is the creation of the PaRIS Patient Advisory Panel, which included representatives from various patient organizations who participated in all stages of the survey’s development. Challenges encountered during pilot implementations varied by country, influenced by factors like existing data infrastructures and regulatory environments. For instance, countries lacking robust data collection systems faced more significant hurdles in adapting the survey to their contexts. The article emphasizes that while rigorous standardization is essential for making international comparisons, adaptation to local contexts is crucial for addressing specific implementation challenges. The joint efforts of all stakeholders are vital for the success of international initiatives like the PaRIS survey. Such collaborative efforts not only facilitate the collection of meaningful data but also contribute to the enhancement of primary care quality through informed policymaking and improved patient care practices.