Medicine Access Programmes: what do patients think – a patient‐reported outcome study on ribociclib in metastatic breast cancer in Australia
This study evaluated patient-reported outcomes (PROs) of Medicine Access Programmes (MAPs) for Australian metastatic breast cancer patients on ribociclib. Limited patient awareness of MAP enrolment was identified, emphasising the need for improved education and consent processes. Most patients expressed gratitude for accessing non-funded medications and perceived enhanced medication adherence as a key benefit. Integrating PRO data with real-world registry data provides comprehensive insight for future MAP development.
Authors
- Sally E. Baron-Hay (ORCID: https://orcid.org/0000-0002-9748-1458)
- Michelle Nottage (ORCID: https://orcid.org/0000-0002-1620-1961)
- Louise Nott (ORCID: https://orcid.org/0000-0001-8646-1585)
- Vanessa Wong (ORCID: https://orcid.org/0000-0002-4323-8786)
- Robert helmut Blum (ORCID: https://orcid.org/0000-0002-5270-3854)
- Sheau Wen Lok (ORCID: https://orcid.org/0000-0002-9919-1665)
- Anthony Uccellini
- Benjamin Forster (ORCID: https://orcid.org/0000-0001-9356-8639)
- Peter Gibbs (ORCID: https://orcid.org/0000-0003-1423-4484)
- Katharine Cuff (ORCID: https://orcid.org/0000-0002-9261-3618)
- Ali Tafreshi (ORCID: https://orcid.org/0000-0002-8956-3373)
- Catherine Morton
- Elgene Lim (ORCID: https://orcid.org/0000-0001-8065-8838)
- Michael Green (ORCID: https://orcid.org/0000-0002-0364-726X)
- Richard de Boer (ORCID: https://orcid.org/0009-0000-6986-2010)
- Daphne Tsoi
- Kelly Mok
- N. Y. Yap (ORCID: https://orcid.org/0009-0007-6677-573X)
- Susan Chua
- Kerrie Clarke
Institutions
- St John of God Subiaco Hospital (AU)
- Mater Health Services (AU)
- The Royal Melbourne Hospital (AU)
- Walter and Eliza Hall Institute of Medical Research (AU)
- Royal Brisbane and Women's Hospital (AU)
- Epworth Hospital (AU)
- Peter MacCallum Cancer Centre (AU)
- Liverpool Hospital (AU)
- Wollongong Hospital (AU)
- Princess Alexandra Hospital (AU)
- Royal Hobart Hospital (AU)
- Eastern Health (AU)
- St Vincent’s Private Hospital Sydney (AU)
- Western Health (AU)
- Albury Wodonga Health (AU)
- Northern Cancer Institute (AU)
- St John of God Hospital (AU)
- Bendigo Health (AU)
- The Kinghorn Cancer Centre (AU)
- Olivia Newton-John Cancer Wellness & Research Centre (AU)
- Austin Health (AU)
Publication Details
- Journal
- Internal Medicine Journal
- Published
- 2024-10-28
- DOI
- https://doi.org/10.1111/imj.16536
- Citations
- 1
- Primary Topic
- Advanced Breast Cancer Therapies
- Type
- article
- Field-Weighted Citation Impact
- 0.42