Inflammatory Neuropathy Consortium base (INCbase): a protocol of a global prospective observational cohort study for the development of a prediction model for treatment response in chronic inflammatory demyelinating polyneuropathy
With this study, we aim to create a clinically relevant and implementable prediction model for treatment response to first line treatments in CIDP. INCbase enrollment started in April 2021, with 29 centers across 8 countries and 303 patients participating to date. This collaborative effort between academia, patient advocacy organizations and pharmaceutical industry will deepen our understanding of how to diagnose and treat CIDP.
Authors
- Eugenia Martínez‐Hernández (ORCID: https://orcid.org/0000-0002-8317-7068)
- Gerardo Gutiérrez‐Gutiérrez (ORCID: https://orcid.org/0000-0003-1391-754X)
- Karissa Gable (ORCID: https://orcid.org/0000-0003-2777-7277)
- Jia‐Ying Sung (ORCID: https://orcid.org/0000-0003-0534-7882)
- Teresa Sevilla (ORCID: https://orcid.org/0000-0003-4716-2667)
- Luís Querol (ORCID: https://orcid.org/0000-0002-4289-8264)
- Milou R. Michael (ORCID: https://orcid.org/0009-0006-2705-7500)
- Marie Théaudin (ORCID: https://orcid.org/0000-0002-3026-3595)
- Ivana Basta (ORCID: https://orcid.org/0000-0001-8768-2136)
- Agustina M. Lascano (ORCID: https://orcid.org/0000-0001-7572-8811)
- Germán Morís (ORCID: https://orcid.org/0000-0001-7608-2194)
- Paolo Ripellino (ORCID: https://orcid.org/0000-0002-8662-9656)
- Amro Maher Stino (ORCID: https://orcid.org/0000-0002-7793-6662)
- Ahmet Höke (ORCID: https://orcid.org/0000-0003-1215-3373)
- Eduardo Nobile‐Orazio (ORCID: https://orcid.org/0000-0003-2624-8138)
- Sara Nagy (ORCID: https://orcid.org/0000-0002-3508-860X)
- Kuan‐Lin Lai (ORCID: https://orcid.org/0000-0002-2436-6555)
- Luuk Wieske (ORCID: https://orcid.org/0000-0002-2522-4081)
- Lars Høj Markvardsen (ORCID: https://orcid.org/0000-0002-5562-9768)
- Yusuf A. Rajabally (ORCID: https://orcid.org/0000-0002-7170-8343)
- Mamatha Pasnoor (ORCID: https://orcid.org/0000-0001-7424-4719)
- Haruki Koike (ORCID: https://orcid.org/0000-0002-4612-3183)
- Kathrin Doppler (ORCID: https://orcid.org/0000-0003-2883-0009)
- Diana Castro (ORCID: https://orcid.org/0000-0001-9008-0208)
- Cheng‐Yin Tan (ORCID: https://orcid.org/0000-0002-3578-3493)
- Sung‐Tsang Hsieh (ORCID: https://orcid.org/0000-0002-3188-8482)
- Michael Peter Lunn (ORCID: https://orcid.org/0000-0003-3174-6027)
- Mahima Kapoor (ORCID: https://orcid.org/0000-0001-5498-3426)
- Ivonne Jericó Pascual
- Andrea M. Humm (ORCID: https://orcid.org/0000-0002-1435-7903)
- Thomas Hundsberger (ORCID: https://orcid.org/0000-0002-4419-2767)
- Jeffrey A. Allen (ORCID: https://orcid.org/0000-0001-8753-2680)
- Filip Eftimov
- Bart C. Jacobs
- Michal Vytopil
- Long‐Sun Ro
- Arnau Llaurado-Gayete
Institutions
- University of Minnesota (US)
- Humanitas University (IT)
- Saga University (JP)
- University of Milan (IT)
- Queen Elizabeth Hospital Birmingham (GB)
- Hospital de Sant Pau (ES)
- Erasmus MC (NL)
- The Alfred Hospital (AU)
- Aarhus University Hospital (DK)
- University of Malaya (MY)
- University of Belgrade (RS)
- Laboratory for Biomedical Neurosciences (CH)
- Amsterdam Neuroscience (NL)
- Universitätsklinikum Würzburg (DE)
- National Taiwan University Hospital (TW)
- National Hospital for Neurology and Neurosurgery (GB)
- Amsterdam University Medical Centers (NL)
- University College London (GB)
- Università della Svizzera italiana (CH)
- University of Amsterdam (NL)
Publication Details
- Journal
- BMC Neurology
- Published
- 2024-10-25
- DOI
- https://doi.org/10.1186/s12883-024-03903-w
- Citations
- 1
- Primary Topic
- Peripheral Neuropathies and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.37
Funders
- Terumo
- Grifols