Bowel Function Score in Long-Term Follow-Up for Children with Hirschsprung Disease: OASIS-Holistic Care in Hirschsprung Disease Network Position Paper
The OASIS-Holistic Care in Hirschsprung Disease Network Group agreed that this ideal score does not yet exist and is therefore a future goal of the group. Meanwhile, clinicians should use a score for comparable, standardized, objective assessment, and the Rintala Score is suggested. Future developments may also lead to easily accessible patient-reported outcome measures and semi-automated dashboards that allow automated data extraction from electronic health records.
Authors
- Judith Lindert (ORCID: https://orcid.org/0000-0002-3543-5974)
- Anders Telle Hoel (ORCID: https://orcid.org/0000-0003-0263-750X)
- Eva Amerstorfer
- Joe Curry
- Eberhard Schmiedeke (ORCID: https://orcid.org/0000-0002-7950-2104)
- Stavros Loukogeorgakis (ORCID: https://orcid.org/0000-0002-2960-5252)
Institutions
- Oslo University Hospital (NO)
- Medical University of Graz (AT)
- Great Ormond Street Hospital (GB)
- Klinikum Bremen-Mitte (DE)
- University College London (GB)
- University of Rostock (DE)
Publication Details
- Journal
- Children
- Published
- 2024-10-24
- DOI
- https://doi.org/10.3390/children11111284
- Citations
- 3
- Primary Topic
- Congenital gastrointestinal and neural anomalies
- Type
- article
- Field-Weighted Citation Impact
- 1.72