“Should I Let Them Know I Have This?”: Multifaceted Genetic Discrimination and Limited Awareness of Legal Protections among Individuals with Hereditary Cancer Syndromes
Our results illuminate a disconnection between the intended protective effects of genetic nondiscrimination legislation and ongoing genetic discrimination faced by individuals with hereditary conditions. To better support these individuals, this study encourages public outreach and knowledge translation efforts to increase awareness of nondiscrimination legal protections.
Authors
- Catriona Remocker
- Julee Pauling
- Sepideh Rajeziesfahani (ORCID: https://orcid.org/0000-0003-4102-5231)
- Kasmintan A. Schrader (ORCID: https://orcid.org/0000-0002-7413-4314)
- Yvonne Bombard (ORCID: https://orcid.org/0000-0002-9516-4539)
- Sevtap Savas (ORCID: https://orcid.org/0000-0002-7324-938X)
- Teresa Tiano
- Claudia Pavao
- Sophie Sun (ORCID: https://orcid.org/0000-0001-6003-7786)
- Tracy Graham
- Angelina Tilley
- Holly Etchegary (ORCID: https://orcid.org/0000-0001-9673-0726)
- Lesa Dawson (ORCID: https://orcid.org/0000-0002-6879-6602)
- Andrea Eisen (ORCID: https://orcid.org/0000-0001-8037-9556)
- Carly Butkowsky (ORCID: https://orcid.org/0000-0001-8049-022X)
- Marc Clausen
- Ridhi Gopalakrishnan
- Vernie Aguda
- Derrick Bishop
- Melyssa Aronson (ORCID: https://orcid.org/0000-0002-7503-5799)
- Jordan Sam
- Emma Reble
- Petros Pechlivanoglou (ORCID: https://orcid.org/0000-0001-5090-7936)
- Chloe Mighton
- Brooklyn Sparkes
- Jane Green (ORCID: https://orcid.org/0000-0002-0858-0500)
Institutions
- St. Michael's Hospital (CA)
- Memorial University of Newfoundland (CA)
- Sunnybrook Health Science Centre (CA)
- University of Toronto (CA)
- Hospital for Sick Children (CA)
- Health Sciences Centre (CA)
- Sinai Health System (CA)
- Unity Health Toronto
Publication Details
- Journal
- Public Health Genomics
- Published
- 2024-10-24
- DOI
- https://doi.org/10.1159/000542210
- Citations
- 4
- Primary Topic
- BRCA gene mutations in cancer
- Type
- article
- Field-Weighted Citation Impact
- 2.20