Heuristics Identified in Health Data–Sharing Preferences of Patients With Cancer: Qualitative Focus Group Study

The findings provide a novel qualitative understanding of how health data-sharing decisions and preferences may be based on heuristic processing. As patients consider the extent of risks and benefits, heuristic processes influence their assessment of anticipated outcomes, which may not result in rational, truly informed consent. This study shows how considering heuristic processing when designing current consent mechanisms opens up the opportunity for more meaningful and realistic interactions with the complex decision-making context.

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Publication Details

Journal
Journal of Medical Internet Research
Published
2024-10-23
DOI
https://doi.org/10.2196/63155
Primary Topic
Privacy, Security, and Data Protection
Type
article
Field-Weighted Citation Impact
0.00
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article

Heuristics Identified in Health Data–Sharing Preferences of Patients With Cancer: Qualitative Focus Group Study

Anna Hermansen, Dean A. Regier, Nick Bansback, Kimberlyn McGrail et al.
Journal of Medical Internet Research
Privacy, Security, and Data Protection
article

Heuristics Identified in Health Data–Sharing Preferences of Patients With Cancer: Qualitative Focus Group Study

Anna Hermansen, Dean A. Regier, Nick Bansback, Kimberlyn McGrail, Samantha Pollard
article en

Abstract

The findings provide a novel qualitative understanding of how health data-sharing decisions and preferences may be based on heuristic processing. As patients consider the extent of risks and benefits, heuristic processes influence their assessment of anticipated outcomes, which may not result in rational, truly informed consent. This study shows how considering heuristic processing when designing current consent mechanisms opens up the opportunity for more meaningful and realistic interactions with the complex decision-making context.

Journal of Medical Internet ResearchVol. 26
University of British Columbia (CA)
Openalex Percentile: Top 70%
Privacy, Security, and Data Protection
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